Iāve been lurking and following this thread a while. I want to try to answer the thread topic question, as an introduction of sorts.
I have a very, very rare disease called Moersch-Woltmann Syndrome or āStiff Person Syndrome.ā It is a progressive, incurable neuromuscular disorder, and not much is really known about it. Probably autoimmune, definitely debilitating, and difficult to treat.
The primary feature of SPS is a failure in the GABA system, so certain muscle groups literally canāt āturn off.ā Untreated, I have muscle spasms 24 hours a day in my trunk and upper parts of my legs. Worse spasms can break bones and tear ligaments. It sucks!
I am treated with Immune Globulin, very high doses of Baclofen, Diazepam, and Duloxetine. These mostly control the bad spasms. But, they are all CNS depressants, so I canāt take opioids for pain (until it is give up and hospice time, which aināt yet for me). Three different doctors told me āgo look into CBD and THC for pain and spasticity relief.ā
I hadnāt used marijuana in 25 years at that point, and let me tell you...things have changed! Took me a while to figure out what works for me (and it changes):
* I make and eat 1:1 CBD:THC edibles (glycerine or fat/lecithin) through the day as a base layer
* I vape 1:1:1 CBG:CBD:THC dry herb starting in the mornings when I donāt have to be out for an appointment (in which case itās CBG:CBD).
* I vape more and more THC as the day progresses, usually to the point of ending the day with just THC herb.
* I use āsessionā vapes several times a day (DiTanium and SBL Runt); I microdose frequently with a DynaVap.
* I occasionally use concentrates as either bowl toppers or with an enail (DiTanium) if Iām in a ton of pain.
Does any of it work? Not really, at a deep level. But it helps enormously for me and n a few fronts which affect my chronic pain: it helps me to get and stay relaxed, physically and mentally, which reduces pain for me; it helps to buffer a symptom of SPS I have called āekplexiaā which causes extreme startle responses (and falls, injuries, etc.); and it allows me to focus on things other than pain.
Iāve gravitated towards heavy āindicaā types and away from strains people describe as āenergizingā or ācreative.ā Make me anxious. I love the purples and kushes and GSC phenos. They work, and they taste good too.
What I need help with (only six months in) is how to protect my throat and lungs as much as possible. Iāve started vaping through water, which helps some. But...I vape a lot, and edibles donāt seem to really do it for me. How do you all cope with throat and lung irritation?