Nausea: The Monster

[grokit]

You hated that job, and are meant for something better

 

[Radio]

thanks man, that was like a nice hug. gotta keep eachothers spirits high when shit like this happens. means a lot

 

[EveryDayAmnesiac]

for some reason this thread title seems fitting for my current state

i just got fucking fired 5 minutes ago. no idea how to even begin mentally preparing for the harsh and malnutritioned december ahead of me.

Sounds like you need a pep talk.

 

[Vicki]

God help you if you have an incurable disease. It's always, "let's TRY this."

There has to be a point when the RX drugs side effects do not outweigh the damage from the disease, and only cause more harm then good. What is that point, and who gets to decide? If the patient decides to stop taking their medication, why are they labeled, "patient non-compliant?" These are all rhetorical questions that go through my mind. If one RX drug doesn't work, why am I forced to keep trying new ones that give me horrible side effects?

I am now seeing a new doctor because my old GP closed her practice. The new doctor refuses to give me any pain medication, but has no problem with antidepressants and benzos. It is her opinion that if I treat my Rheumatoid Disease more aggressively, I will have less pain. So far, it's been a month and a half on these new drugs. I have lost 9 pounds and am now down to 108 pounds. I have absolutely NO appetite whatsoever, and have to force myself to eat anything. My hair is falling out, the nausea is constant, and I won't even get into the constant diarrhea. I'm taking so many pills, I have to keep track of morning, noon, afternoon, and bedtime doses.

I got a Microsoft Band for an early birthday present, and it's showing me just how sick I really am. Burning more calories than I can take in. Getting 1-2 good hours of decent sleep a night. I mean, I knew I slept for crap, but didn't know how bad until the Band started recording the patterns. Yes, I am documenting all this, and will be sharing with my new GP.

I am so glad that I am pretty much recovered from all my surgeries this year, but that is the only reason the doctor's held back on the RA drugs. I knew this day was coming, but wasn't prepared for how bad it really is.

 

[grokit]

Sorry @Vicki, what about getting a second opinion?
Maybe you can find another doctor more like your old one.

 

[Vicki]

Sorry @Vicki, what about getting a second opinion?
Maybe you can find another doctor more like your old one.

This is the 4th doctor to treat my RA, and good doctors are almost impossible to find here. They also treat real patients like drug addicts here as well. If a patient goes from doctor to doctor, for whatever reason, they are labeled a "doctor shopper," looking for drugs, even if they are legitimately ill. There was just a story on the news about this very subject. @mvapes knows exactly what I am talking about.

 

[t-dub]

In the war against the monster I have a new tool. Its a quick version of Greek Lemon Soup that I do at home. After one of my attacks, I have to start all the way back at "clear" foods like Jello and such to get my tummy accepting food again. My mother just takes a mug and throws in a scoop of nice salt, not the bleached death salt they sell everywhere but nice natural Real Salt, and the juice of about half a lemon. Stir that up with some chicken broth and warm in the microwave for 30 seconds or so. The salt and lemon can be adjusted to taste obviously but this little concoction goes down easy, encourages you to drink more, and the lemon treats your tummy well . . .

 

[Vicki]

In the war against the monster I have a new tool. Its a quick version of Greek Lemon Soup that I do at home. After one of my attacks, I have to start all the way back at "clear" foods like Jello and such to get my tummy accepting food again. My mother just takes a mug and throws in a scoop of nice salt, not the bleached death salt they sell everywhere but nice natural Real Salt, and the juice of about half a lemon. Stir that up with some chicken broth and warm in the microwave for 30 seconds or so. The salt and lemon can be adjusted to taste obviously but this little concoction goes down easy, encourages you to drink more, and the lemon treats your tummy well . . .

I'll give it a try.

 

[Melting Pot]

Hey eveveryone Hope you all got through Thanksgiving alright. @Vicki seems we are in the same boat but with different illnesses those meds are killing us.I have been back and forth with both my GP and my cardiologist I've had another procedure zap my heart out of a-fib made some modifications to my pacemaker and overall just made me feel worse.He said my pacemaker was pacing my heart 95% of the time so by getting me out of afib and modifying my Pace maker I should feel better not the case!! My GP prescribed me Omeprazole for my stomach in some mood stabilizer for my depression and rage which they won't give me because it contradicting my heart medicine.I guess we just gotta keep up the battle hopefully these doctors will get our her meds lined up correctly and will start feeling good someday.

 

[Vicki]

Hey eveveryone Hope you all got through Thanksgiving alright. @Vicki seems we are in the same boat but with different illnesses those meds are killing us.I have been back and forth with both my GP and my cardiologist I've had another procedure zap my heart out of a-fib made some modifications to my pacemaker and overall just made me feel worse.He said my pacemaker was pacing my heart 95% of the time so by getting me out of afib and modifying my Pace maker I should feel better not the case!! My GP prescribed me Omeprazole for my stomach in some mood stabilizer for my depression and rage which they won't give me because it contradicting my heart medicine.I guess we just gotta keep up the battle hopefully these doctors will get our her meds lined up correctly and will start feeling good someday.

I'm sorry to hear you are not feeling well either.

My side effects aren't any worse, but not much better either. It's consistent diarrhea, nausea, and hair loss. As a result, I also now have to take Lomotil and Phenergan daily to stave off those symptoms. Nothing I can really do about the hair loss. I'm hoping the side effects will level off soon. More drugs, vicious cycle.

We both need a break.

 

[justme]

This is the 4th doctor to treat my RA, and good doctors are almost impossible to find here. They also treat real patients like drug addicts here as well. If a patient goes from doctor to doctor, for whatever reason, they are labeled a "doctor shopper," looking for drugs, even if they are legitimately ill. There was just a story on the news about this very subject. @mvapes knows exactly what I am talking about.

sorry to hear of your struggles....
i have suffered for over year after my PCP doctor abandoned my care and my neuro fired me after a severe medication reaction, he misdiagnosed MS. that guy said i would never find a doctor. i have been with out treatment and suffer so bad. i believe i have been blacklisted. i have been labeled... and my medical records read like someone bitchin on fakebook. wanna read about my story i started blogging... message me. my story is a wild ride

i do not know what to do or where to turn for help.

suffering sucks- no treatment options suck. my quality of life sucks because i am ill and have no reasonable treatment options.

 

[Melting Pot]

You know what I hate the worst when the monster comes knocking.
That feeling of your mouth starting to water.U think do I have to run or can I fight it down.
My weapons of choice for the battle today. Is my GB-187 ceramic Dome less,E-nano and my Amo is sour purple diesel shatter,and some Vodoo Og and some watermelon flower.
I feel sorry for the monster today!!!

 

[Vitolo]

I feel sorry for the monster that lives out your way too.
That would be a good start to get my personal beast on the run!

 

[ataxian]

I feel sorry for the monster that lives out your way too.
That would be a good start to get my personal beast on the run!

Blueberry Haze look for it!

 

[Melting Pot]

So when I woke this I did my usual routine got on the scale.
WOW 179 I was 150 160 in high school.
I can't wait to get the surgery behind me and hopefully get off some of these meds!!!
I'm trying to get my doctor to prescribe me Marinol or Dronabinol I thought it might help my appetite.Amo is running low these days!!!
The sad thing is I'm lying to my wife she still thinks I'm 190!!!
I just don't want to hear it anymore!!!
I know I have to eat!!!

 

[OldOyler]

So when I woke this I did my usual routine got on the scale.
WOW 179 I was 150 160 in high school.
I can't wait to get the surgery behind me and hopefully get off some of these meds!!!
I'm trying to get my doctor to prescribe me Marinol or Dronabinol I thought it might help my appetite.Amo is running low these days!!!
The sad thing is I'm lying to my wife she still thinks I'm 190!!!
I just don't want to hear it anymore!!!
I know I have to eat!!!

@Melting Pot ,

Great peace and healing to you.

I had to post because I have been lying to my wife about my weight, too. I try to look "voracious" in my appetite. But she's pretty smart. Moved food isn't eaten food, and of course I don't want to upset her (not my first marriage, but trying to make it my last!). Started at 248 in November of last year. Pancreas...gremlins (I still can't say it) had started to kick my behind. I'm now 180.

She knows I lost alot, but I have tried to make it appear that it has "stabilized". Really, it's just eating my muscles away now - not losing any more fat that I can see (but I still see some, darn it!).

Thanks for letting me see that I needed to get that "out". Seriously.

All I can give back is that when I started mixing my RSO (real basic, old-tymey method, nothin' fancy) and mixing it 1:1 with EJMix and vaping it, I at least got that (I don't know if you will know what I'm talking about here, if not my bad) pre-appetite state going - that's not quite right, but close enough. If I vape 6 or 8 pulls from my Kanger (EMOW Mega) with that mix about 15 minutes before eating, I at least don't have that "auto-rejection" from my digestive system as soon as it hits my mouth. (My wife can't understand how I can take a bite of perfectly good tasting food, and not only don't want any more, but I will actually begin to have a revulsion, and nothing is going down after that.)

I found that to be the case with several strains, namely a white widow and one called "Dark Angel" (Crop King Seeds, CANADA on both of those just for clarity).

Peace.

 

[t-dub]

I have made a huge decision. After 10 years of chemo I am titrating off. I feel so much better already. Please wish me luck . . .

I just don't want to hear it anymore!!!
I know I have to eat!!!

Yes, your food will be your medicine and your results are going to be determined by what you ingest. Believe me, i have just come off ten years of chemo so I'm going through an almost religious experience just because of that, but I have been studying, intensely, healing of the gut and how health revolves around healthy gut, liver, and brain. I realize you and I are in two completely different medical worlds, however, you are what you eat (are able to digest) you can cut out the bad stuff but you MUST consume the nutrients to heal your body no matter WHAT they may be. Period.

 

[Melting Pot]

Yes @t-dub I am currently in the process of changing my diet trying to eat more chicken fish rice and greens.and less red meat potatoes and gravy.Lol
Just having an appetite lately seems to be the issue I think its all the pills and the stress soon to be better.
Fingers crossed

 

[RUDE BOY]

@Melting Pot and @OldOyler 180 lbs and 190 lbs ??? I wish I was Fat like you guys. If I can break 140lbs I'm lucky. But at 5'10" 160ish used to be my "normal" healthy weight so now at 135 I'm actually feeling alright these days at least better then when I was at 119lbs.

@Melting Pot if you do get the Marinol you may find you need to add cbn and cbd cannabinoids to help with stimulation of appetite. Marinol alone did little for me compared to low low grade bud, Damn near useless for me but I have known a couple people that it helped, hope your one of those.

 

[t-dub]

I can't tell you guys what it was like to actually "INHALE" a Five Guys burger the other night. Incredible. @Melting Pot your chemo will be shorter than mine which is a blessing. I have been harming my gut for many years with pills also. I am healing my leaky gut which inflames my disease, and I find the gut to be the center of all heath for me right now . . .

 

[OldOyler]

Yes @t-dub I am currently in the process of changing my diet trying to eat more chicken fish rice and greens.and less red meat potatoes and gravy.Lol
Just having an appetite lately seems to be the issue I think its all the pills and the stress soon to be better.
Fingers crossed

Dear Lord Melting Pot, NOT the gravy!!! Not. The. Gravy...!

 

[Melting Pot]

Dam bro
@t-dub I really hope u start feeling better!!
Fuck chemo!!!!
No chemo for me open heart surgery.
3/17/15 I got a date at the mayo!!!

 

[Vitolo]

Good luck t-dub

so now at 135 I'm actually feeling alright these days at least better then when I was at 119lbs

There is hope. Coincidental numbers match here..
I was 151 for a lifetime. After colon surgeries I was 119.. and floated up and down as high as 135.
I was stuck there for a number of years (those who saw my videos saw the weight change once things improved for me.)
I swear that I credit both juicing regime, and humongous cannabinoid consumption with my improvements.
My consumption increased in all areas: Inhalation (my God.. I never put the vaporizers down), topical, medibles.... and every shade of concentrate known to man. Yes... even Rick Simpson Oil (created) and Shona Banda (collected from glass walls)
@RUDE BOY - I weigh in at a whopping 155 now. 4 pounds more than at my lifetime high.
I think you will rise again, you will get that weight back.

and I find the gut to be the center of all heath for me right now . . .

@t-dub I saw you change in weight on our Skype visits.
I feel joy that you're eating.

Yes, your food will be your medicine and your results are going to be determined by what you ingest...

Food always has been our medicine.
Most of us don't realize it until illness lives with us.
Eating poorly is common.

 

[Melting Pot]

Well I always come here to whine and cry. Today is a little different story starting the healing process from my surgery. And I'm here to tell you FUCK YOU monster get out of my house you are not welcome here!!!!!!!!!
First day home from mayo my usual morning routine walk over to the scale what's the damage 177 today.But that's okay today I went into my kitchen took one pain pill not the handful that I'm used to cooked up a couple of scrambled eggs toast ate it all and enjoyed it.later tonight I have one cardiac drug and one relaxation drug (calm me the fuck down) which they recommending me stop taking citalopram and switched over to xanax???
so I went. From 18 to 20 Pill's day down to 2or3 win win for me.
To all my FC friends feel better!!!!!!!!!
got it I'm here with my GP today see how that goes?
And I just noticed this is message# 420 Looks like you know what kind of day I'm having Awesome

 

[Vitolo]

Right on.
Positive shit helps me have a better day.
You helped!