Fuck the Parkinson's, the Dr just gave me a reason to smoke MORE!

Vicki

Vicki

Herbal Alchemist
God help you if you have an incurable disease. It's always, "let's TRY this." :disgust:

There has to be a point when the RX drugs side effects do not outweigh the damage from the disease, and only cause more harm then good. What is that point, and who gets to decide? If the patient decides to stop taking their medication, why are they labeled, "patient non-compliant?" These are all rhetorical questions that go through my mind. If one RX drug doesn't work, why am I forced to keep trying new ones that give me horrible side effects?

I am now seeing a new doctor because my old GP closed her practice. The new doctor refuses to give me any pain medication, but has no problem with antidepressants and benzos. It is her opinion that if I treat my Rheumatoid Disease more aggressively, I will have less pain. So far, it's been a month and a half on these new drugs. I have lost 9 pounds and am now down to 108 pounds. I have absolutely NO appetite whatsoever, and have to force myself to eat anything. My hair is falling out, the nausea is constant, and I won't even get into the constant diarrhea. I'm taking so many pills, I have to keep track of morning, noon, afternoon, and bedtime doses.

I got a Microsoft Band for an early birthday present, and it's showing me just how sick I really am. Burning more calories than I can take in. Getting 1-2 good hours of decent sleep a night. I mean, I knew I slept for crap, but didn't know how bad until the Band started recording the patterns. Yes, I am documenting all this, and will be sharing with my new GP.

I am so glad that I am pretty much recovered from all my surgeries this year, but that is the only reason the doctor's held back on the RA drugs. I knew this day was coming, but wasn't prepared for how bad it really is.
 
Vicki

Vicki

Herbal Alchemist
momofthegoons said:
@Vicki have you shared all of what is happening to you with your new GP? Your side effects are pretty dramatic.
Click to expand...

I go in for blood tests end of January, and see her again the beginning of February. I haven't called her about the side effects yet, but I've only been taking these drugs about a month. I am very sensitive to drugs, and when I have just stopped meds before, the doctors said I didn't give the drugs a fair chance to work, and that the side effects don't last.
 
momofthegoons

momofthegoons

vapor accessory addict
Vicki said:
I go in for blood tests end of January, and see her again the beginning of February. I haven't called her about the side effects yet, but I've only been taking these drugs about a month. I am very sensitive to drugs, and when I have just stopped meds before, the doctors said I didn't give the drugs a fair chance to work, and that the side effects don't last.
Click to expand...
Hmmm. I have a feeling she might tell you that you should have called. If you've been on the meds for over a month, the side effects should (imo) have neutralized a bit by now. The fact that you are so nauseous that you can't eat and have lost the amount of weight you have is serious in itself. You're an itty bitty thing to begin with! Please pick up the phone.... perhaps there is a different drug that can be tried.
 
Vicki

Vicki

Herbal Alchemist
I put in a call this morning, and she told me to continue the drugs. She told me to start using Lomotil and Phenergan to combat the side effects. My hair was already falling out a little bit because I am Hypothyroid (we are trying to get the right Synthroid dose), but the Plaquenil is making it a little worse. No bald spots, just thinning.

I knew she would say that because the other doctors said the exact same thing when I was on other RA drugs.

On the bright side, I haven't had a period in 45 days and the Prednisone hasn't made me a rotten cunt......yet.

I know I am no doctor, but I think I am suffering from this as well, and plan to bring it up at my next appointment.

http://en.wikipedia.org/wiki/Hypermetabolism

This new Microsoft Band has been very insightful. I only get about 2 hours of restful sleep per night, and I'm burning around 400 calories a night, just while I sleep! I didn't think that was even possible!
 
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mvapes

mvapes

Scratchin' Glass!
Accessory Maker
@Vicki - I would agree with the doc. My meds completely fucked me up for the first few months, years, or at least until they got the line up straight. Eventually they'll get it balanced. I want you to start reading and doing things again that bring a smile to your face and I'm serious about this. The first couple years after my diagnosis I became a miserable self loathing and somewhat of a recluse. I figured "fuck it", my life was ruined anyway right?

Well, a good friend told me that I was looking at things the wrong way and that we could find a positive about anything in our lives but most of us (myself included) don't want to spend the time to find it. For example, my hands shake all the time but now I make the best martinis in town.

Having PD sucks, I wouldn't wish it on my worst enemy but, it could have been much worse. Maybe I can't run along the beach with my kids anymore but I sure as fuck could take them to a park and play on the swings with them. What I'm really getting at is we don't enough time appreciating what we do have as opposed to always gravitating towards what we don't.

When's the last time you enjoyed a comic, or a movie, or some good ole fashion scy-fy? Or taking a ride to one of the stores you like to frequent? When's the last time you said to yourself fuck this, I'm too good for this shit?

@Vicki - when we all did comic-con I happen to remember you being like a kid in a candy store! You were you, not you with an illness. I know you, you got this! Fuck the illness, your too strong for that shit. If I can go out and fall or trip on stairs or pee my pants publicly than you can be too!

Obviously I was kidding about the stuff that happens to me, peeing in my pants has nothing to do with Parkinson's.

You just worry about the good stuff and let the doctors do their job. It will all fall into place.

:tup:
 
grokit

grokit

well-worn member
@Vicki, perhaps you should get a fecal transplant with somebody like me, whose barely-functioning metabolism seems to be pretty much the opposite of yours.
:lmao:Let's exchange some shit for the holidays!

:shit: Seriously, feces is the new stocking stuffer among the medical set:

http://en.wikipedia.org/wiki/Fecal_bacteriotherapy
http://www.mayoclinic.org/medical-p...seases/quick-inexpensive-90-percent-cure-rate
http://thepowerofpoop.com/epatients/fecal-transplant-instructions/

fecal-transplant-shopping-list-1024x725.jpg

poop-blended-1024x815.jpg


All kinds of exciting snacks can be made!
fecal-transplant-300x294.jpg
4422452_s.jpg

20121126_20121114fecal004_33.jpg

Hungry yet? Too bad one of us is supposed to be healthy :bang:
 
D

dorkus_molorkus

Well-Known Member
I was wondering how @mvapes lost all that weight?


then I see this and all becomes clear.

Just in time for the next season of biggest loser, is the mvapes exercise video
called
'Shake it Baby, you wont break it.'

Featuring the Fecal shakes diet & the 'all shook up' exercise naked weight loss regime.
(not to be confused with the 'Achy, breaky, shakey' weight loss regime featuring malaria mosquitoes. )
RIP billy ray, BTW yr daughter is a slut

 
VaporsVaporizer

VaporsVaporizer

On the Stoop
I've not been feeling great since i returned , thought it was just a cold and colds knock me out since i have emphysema ;) i've been on AB's etc for the last 5 days but started to get pain when i coughed. I went to urgent care this morning and had a chest rad and have a touch of pneumonia :rolleyes: So more AB's and Steroids etc. I'll get some photo's up at some point :lol:
 
D

dorkus_molorkus

Well-Known Member
Moms been trolling me again on facebook & I have fucken had enough!
Bitch is even making me crossdress now because she is a nipple hater.

I am the ayatollah of the areola!
'FREE THE AUSSIE TWO!':rockon:


Sorry about all the bad language but when I get really upset my accent changes to righteously indignant west indian campy gay man.


I bet some of you may have learned a new word or two also.
There will be a pop quiz later in the day.:tup:
 
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momofthegoons

momofthegoons

vapor accessory addict
Oh... I think you protest a little too much! And may have the wrong person! You know I've always loved your nipples.

Well! When did it become a crime to enjoy man boobs? Some may call it a fetish, however a fetish is simply an attraction to an object or a body part.

And Mr. Malorkus... you have a fine pair.

Foks... he had them covered up in the vid so you couldn't see but i found a picture he sent me (before he went all asshole majoricus) and thought I would share. And seems to me you had no problem showing off that nip action back then!

qo9fsh.jpg



Where did things go sour?

I think it's cause of all the fun I made of the fact that he had pissed his pants. :nod: Fucker just can't take a joke!


2iu3yxg.jpg
 
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mvapes

mvapes

Scratchin' Glass!
Accessory Maker
pakalolo said:
Click to expand...

I am not a candidate for DBS. Unfortunately once it's done I'm no longer allowed to be considered for stem cell research. That's why I was approved for the patches that I'm on.

Secondly, I would hate to be the bearer of bad news but that video is a fake. None of the movements he showed looked anything like PD nor does dyskenesia look anything like that.

DBS candidates are less severe cases and is only offered to patients who showed more than a 50% improvement from anti-tremor meds as well as dopamine producers.

The other thing interesting about thing about the video that's interesting is that you the patient can NOT turn of the chip on your own.

As far as cannabis, it is a huge help. It helps with the pain and it relieves stress that causes tremors and rigidity.

If everybody wants I'll film a video of myself to give you an idea of what mine is like. Before and after cannabis.
 
momofthegoons

momofthegoons

vapor accessory addict
mvapes said:
If everybody wants I'll film a video of myself to give you an idea of what mine is like. Before and after cannabis.
Click to expand...
You are such a brave man and an inspriation..... :luv:

What a shame that there are people out there that would film something like that and have it be bogus. WTF?!? They just trying to sell the surgery? No dignity in that... :disgust:

Enchantre said:
NOOOOOooooooooooooooooooooooooooo!

I did NOT kill this thread!! Someone, ANYONE, get your ass in here and POST some SHIT!

Thanks.
Click to expand...
Your wish is my command.... :razz:

2iuytrl.gif
 
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