Fuck the Parkinson's, the Dr just gave me a reason to smoke MORE!

grokit

well-worn member
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Happy New Year! Just want to extend a big "Thank You" to everyone in this thread. In the short time I've been here ALL of you have given me help, hope, and happiness in countless ways. Best of all, you've provided me with a real home. It's like you're all some kind of fucked-up utopian 4-H club. I'm just glad to have found y'all:
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Vicki

Herbal Alchemist
My resolution:

I want to be less of a bitch. Having chronic illness's has made me very frustrated because I just can't do the things I used to be able to do. I'm always angry, and I don't know how to make it stop. I really need to badly. :cry:
 

mvapes

Scratchin' Glass!
Accessory Maker
Vicki - were friends. We've actually hung out, been in others home and both of our spouses are part of the mix as well. You my friend are the farthest thing from a bitch I have ever seen. However, bring up politics and Vicki changes like fucking Bruce Banner!

My resolutions are to eat healthier, become better friends with my wife, and keeping the masturbation to a minimum.

Shouldn't be too hard, I heard my wife is cool...
 

Campers Crumpet

What has been seen can not be unseen :|
Speaking of prednisone and steroids, I had a series of 4 injections into my neck about a month ago. No prob there, didn't think much about it.
About 3 weeks ago, feeling like a fatty, I took duramine (weight loss drug) for a week, but didn't like the side effects and actually gained about 3 kg in that week.
Then about 2 weeks ago, while pondering upon life and scratching my chin I found the beginnings of a nice stout beard.
Then about a week ago my always tactful mother asked me if I was pregnant because I'd developed a maternity belly, so much so I was developing a waddle.
I had a minor panic moment as I thought I was morphing into a phantom pregnancy bearded lady with a fat person face. Very attractive on the days when I have a slight limp, I was just waiting for the squint eye and a front tooth to fall out.
Thankfully my clever side took over and I realised I was not turning into a man, and the side effects have started to wear off.
I was scared. Lol.
:myday:

Yeah our diseases are like cousins I think, and you are right we are turning parts of our immune system off. You will like Humira, its a really sharp TNFα inhibitor, I was on a double dose until my body figured it out. They might even let you self inject. I'm using Stelara now at $13k/90mg dose every 10 weeks which is an Interleukin inhibitor, so far the sharpest tool yet but alas its efficacy starts to wane and I have nowhere to go. I'm actually way off label since this drug is only approved for psoriasis and not Psoriatic Arthritis . . . yet . . . the infections I get a lot usually in the armpits or other "moist & dark" places. Hibiclens in the shower helps. I went to see an infectious diseases expert after having my butthole lanced and drained in the ER on my wedding anniversary and I had to be decolonized for Staph . . .
I must say we have a awesome health system in Australia, here's a link to the Aust cost for Stelara.
http://www.chemistwarehouse.com.au/product.asp?id=61120&pname=Stelara+45mg+Injection+Vial+1+
Any Australian resident pays the PBS cost of $36.90, a person with a government concession pays $6.00 and people who have had about 30 scripts in a 12 month period get it free.
My daughter who has type 1 diabetes gets her insulin at a rebated cost of about $6 a month and $2.20 for boxes of testing strips. The full cost for monthly insulin is about $600.
Daughter has just been in hospital for 8 nights with a diabetes related kidney infection and had some minor surgery, iv treatment and I got our private endocrinologist in for a second opinion x2. All the hospital treatment was covered by Medicare and my private health, so nothing out of pocket. And I'm waiting on the endocrinologist account, but I'm presuming I won't be out of pocket more than about $2-300.
I'm so greatful for our health system.
 
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Vicki

Herbal Alchemist
Speaking of prednisone and steroids, I had a series of 4 injections into my neck about a month ago. No prob there, didn't think much about it.
About 3 weeks ago, feeling like a fatty, I took duramine (weight loss drug) for a week, but didn't like the side effects and actually gained about 3 kg in that week.
Then about 2 weeks ago, while pondering upon life and scratching my chin I found the beginnings of a nice stout beard.
Then about a week ago my always tactful mother asked me if I was pregnant because I'd developed a maternity belly, so much so I was developing a waddle.
I had a minor panic moment as I thought I was morphing into a phantom pregnancy bearded lady with a fat person face. Very attractive on the days when I have a slight limp, I was just waiting for the squint eye and a front tooth to fall out.
Thankfully my clever side took over and I realised I was not turning into a man, and the side effects have started to wear off.
I was scared. Lol.
:myday:


I must say we have a awesome health system in Australia, here's a link to the Aust cost for Stelara.
http://www.chemistwarehouse.com.au/product.asp?id=61120&pname=Stelara 45mg Injection Vial 1
Any Australian resident pays the PBS cost of $36.90, a person with a government concession pays $6.00 and people who have had about 30 scripts in a 12 month period get it free.
My daughter who has type 1 diabetes gets her insulin at a rebated cost of about $6 a month and $2.20 for boxes of testing strips. The full cost for monthly insulin is about $600.
Daughter has just been in hospital for 8 nights with a diabetes related kidney infection and had some minor surgery, iv treatment and I got our private endocrinologist in for a second opinion x2. All the hospital treatment was covered by Medicare and my private health, so nothing out of pocket. And I'm waiting on the endocrinologist account, but I'm presuming I won't be out of pocket more than about $2-300.
I'm so greatful for our health system.

I wish I had access to a better healthcare system like you do. God knows I need it.

I'm glad you are getting the help you need, though! :)
 

Tweek

Well-Known Member
My resolution:

I want to be less of a bitch. Having chronic illness's has made me very frustrated because I just can't do the things I used to be able to do. I'm always angry, and I don't know how to make it stop. I really need to badly. :cry:

You are not a bitch, just someone who is in pain. The right people will always understand that.

Just dropped by for a quick hello and to wish you all a happy new year.
 

Enchantre

Oil Painter
You are not a bitch, just someone who is in pain. The right people will always understand that.

Just dropped by for a quick hello and to wish you all a happy new year.
Happy New Year's, Tweek!

@Vicki , I think we must be long-lost sisters... I'd like to be less bitchy, too. And it's because I'm in pain. I got the harder bones, though, I think. I have the bruises, but you end up with breaks. I had to have some compensation, since you got all the looks.
 

Vicki

Herbal Alchemist
Happy New Year's, Tweek!

@Vicki , I think we must be long-lost sisters... I'd like to be less bitchy, too. And it's because I'm in pain. I got the harder bones, though, I think. I have the bruises, but you end up with breaks. I had to have some compensation, since you got all the looks.

I got the looks? :lol:

I'm happy to know there are other people who are going through this too.

***Substitute vape for smoke. ;)

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Dreamerr

Always in a state of confusion and silliness♀
My New Years Resolution that I am making up as I write this is to be way more bitchy, nasty, and just down right an asshole. I will also try to ignore people in real life or tell them to fuck off. I will clean house of everyone I know and move back under my rock..............................I think this is an easy one:nod:
 

t-dub

Vapor Sloth
My New Years Resolution that I am making up as I write this is to be way more bitchy, nasty, and just down right an asshole. I will also try to ignore people in real life or tell them to fuck off. I will clean house of everyone I know and move back under my rock..............................I think this is an easy one:nod:
Thanks @Dreamerr . . . I feel better now . . . this is the year of the purge for me as well. Dysfunctional family members . . . the whole fuckin' deal . . . .
 

Snappo

Caveat Emptor - "A Billion People Can Be Wrong!"
Accessory Maker
My New Years Resolution that I am making up as I write this is to be way more bitchy, nasty, and just down right an asshole. I will also try to ignore people in real life or tell them to fuck off. I will clean house of everyone I know and move back under my rock..............................I think this is an easy one:nod:
Any extra room under that rock for a frog?
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