Fuck the Parkinson's, the Dr just gave me a reason to smoke MORE!

[mvapes]

First of all, @momofthegoons I take great pleasure in my contribution to your poopfullness. Everyone needs a little poop in their life! I'm just glad I could share mine with all of you.

So tonight I ran out and forgot my meds. It's been a long time since I've seen what PD does to me and at first it really bothered me. It scared me. For a minute it put me back someplace I didn't ever want to be again.

But it was different this time, there was no running into a corner. No locking myself in a room. I called my wife, told her to stay on the phone with me until I got where she met me in the driveway with my patch. The difference was I remembered that I have a choice. Let it beat me?

I let my meds kick in, sat with my kids doing artwork and got myself back under control.

Fuck Parkinson's, it will never beat me!

 

[Vicki]

This is how I feel, and have been feeling on a constant basis. ::sigh:: At least this kid makes it sound fun!

 

[mvapes]

Has anyone seen my (small bus) buddy @dorkus_molorkus?

 

[Melting Pot]

Didn't come out right
I don't know @mvapes I sure miss reading his post.We need to get some poo flying.

 

[mvapes]

The good news is....

 

[Melting Pot]

Not me

 

[Quetzalcoatl]

I did too! Then I realized the stupid ring holding the chain inside the water tank busted

 

[Enchantre]

The good news is....

Royal Flush!!

I had my first "normal" morning in months... just confirmation that I really can't have very many carbs & absolutely no dairy (I can have butter).

 

[grokit]

I'm glad everything is coming out okay for most of us

Better luck next time @Melting Pot,

my bowls seem to have taken the day off as well.

 

[momofthegoons]

Has anyone seen my (small bus) buddy @dorkus_molorkus?

Obviously you have forgotten that our dear @dorkus_molorkus goes walk about every year at this time. This year was especially important for him. Lots of stressors in his life....

He realized it was time to go after his last bout of road rage....

Not to worry about him though! Last I heard, he's doing well and has found some excellent new digs!

 

[Melting Pot]

Well I just got back from my cardiologists. And I'm scared as shit to say the least looks like he's going to refer me to the Mayo Clinic. That's were one of the top surgeons for my condition will be to have a consultation with me looks like open heart surgery it's going to be my future.

 

[Enchantre]

Well I just got back from my cardiologists. And I'm scared as shit to say the least looks like he's going to refer me to the Mayo Clinic. That's were one of the top surgeons for my condition will be to have a consultation with me looks like open heart surgery it's going to be my future.

I don't want to "Like" your post. Seriously. However, I do believe you will have excellent care with the best possible prognosis at Mayo. So, thumbs up to that part!

 

[Vicki]

Well I just got back from my cardiologists. And I'm scared as shit to say the least looks like he's going to refer me to the Mayo Clinic. That's were one of the top surgeons for my condition will be to have a consultation with me looks like open heart surgery it's going to be my future.

I'm really sorry to hear that you need surgery. You sound like you will be in good hands, and you sound like a strong person. Stay positive!

 

[grokit]

Surgery = actual repair to me.
Anything else is just maintenance of your illness and/or alleviation of your symptoms, so congrats because this is a step in the right direction @Melting Pot, and should lead to much better days ahead

 

[momofthegoons]

@Melting Pot maybe this time will be the charm! Think positively. The fact that they are considering the surgery is a good sign. It means there is hope for your condition.


Unlike this guy.... there's obviously NO hope for him!

 

[VaporsVaporizer]

Well I just got back from my cardiologists. And I'm scared as shit to say the least looks like he's going to refer me to the Mayo Clinic. That's were one of the top surgeons for my condition will be to have a consultation with me looks like open heart surgery it's going to be my future.

I agree with everyone else, no one wants surgery, but if that's what you need , have it. My mom had her first OHS in 1959 when it was truly barbaric, and she had 4 more over the course of her life to replace valves . Every recovery after that was easier than the previous surgery because of advances in the procedure even when she was in her late 60's .
I know it's a very scary thing, but you will feel so much better when they repair your heart.

 

[mvapes]

@Melting Pot - I've been through Mayo a few times. Hate the fucking drive to Jacksonville knowing that I'm headed to the hospital.

I know whats going through your head and I need to say something that may turn your frown upside down.

Your a lucky man to have the opportunity to do something that I can't.

I know many who would not only look up to for going through these terrible health issues but like myself they too would be jealous.

Whatever it takes, you're strong brother and you'll get through it. Your even (and I pray) going to to come out whole again. Fixed! You have a chance to live normally for the rest of your life. Enjoy this moment.

My jealousy? There is no procedure to fix me.

Let me know when your going, you definitely have a visitor coming to see you.

With a vape....

 

[Melting Pot]

Thanks @Enchantre @Vicki @grokit @momofthegoons @VaporsVaporizer @mvapes for the awesome words of encouragement I really appreciate them and agree.

I can't express enough how happy I am that it is getting done at the Mayo Clinic. I feel very fortunate not being done at local Hosp.
As far as a cure goes not really the case. I wish!! My disease is that the muscle in my heart continue's to grow not like just replacing a valve or removing blockage.

Seems this last year a lot of good stuff happening in my life I joined FC bought some awesome vapes met all u guys and gals got a real Dr said FuckCombustion and now I'm headed to the MC wow

Also happened quicker than I thought got an appointment in 3 weeks

 

[mvapes]

Thanks @Enchantre @Vicki @grokit @momofthegoons @VaporsVaporizer @mvapes for the awesome words of encouragement I really appreciate them and agree.

I can't express enough how happy I am that it is getting done at the Mayo Clinic. I feel very fortunate not being done at local Hosp.
As far as a cure goes not really the case. I wish!! My disease is that the muscle in my heart continue's to grow not like just replacing a valve or removing blockage.

Seems this last year a lot of good stuff happening in my life I joined FC bought some awesome vapes met all u guys and gals got a real Dr said FuckCombustion and now I'm headed to the MC wow

Also happened quicker than I thought got an appointment in 3 weeks

The good news is - you ain't going through it without us.

 

[elvenflow]

My aunt, who is 90 and, thanks to family inbreeding on that side was born with an incompletely formed heart, malformed kidneys and a host of other issues, recently had surgery in that very place and is doing quite well for an aging mutant. Close cousin marriage is a bad idea.

 

[VaporsVaporizer]

As far as a cure goes not really the case. I wish!! My disease is that the muscle in my heart continue's to grow not like just replacing a valve or removing blockage.

Do you have HCM? and if so, are they considering a Septal Myectomy? That has a very good success rate

 

[Melting Pot]

I have HTCM but yes that's what there going to do.Just had stop watching a video about the procedure.not going to be fun 6 month recovery.just googled HCM my bad that's exactly what I have.Duh

 

[mvapes]

@momofthegoons - told you it was mad!

 

[VaporsVaporizer]

I have HTCM but yes that's what there going to do.Just had stop watching a video about the procedure.not going to be fun 6 month recovery.just googled HCM my bad that's exactly what I have.Duh

Most people don't want to watch video's of their surgery prior to surgery unless you're in the medical field or can handle that kind of stuff lol .
Having worked in surgery, i will say, they put the BEST people in Cardio / Thoracic . It's not the field/ specialty for everyone. I didn't like working those cases, (Surg Tech) . You'll be at the Mayo and in very good hands
So, you'll have a longish recovery, better than feeling sick forever.

 

[Vicki]

Most people don't want to watch video's of their surgery prior to surgery unless you're in the medical field or can handle that kind of stuff lol .

I looked up videos of everyone of my surgeries last year. The Pulvertaft Weave was fascinating to watch! I did it to face my fears. I hate the unknown.