so im seeing another neuro next week for a second opinion. I've calmed down now and let my brain absorb everything (post vape).
It wasn't necessarily what the doctor said as much as it the timing. Right before I left to go see the dr my mother had sent me a photo of Nanny. It fucking floored me to say say the least, this was on top of the fact when my doctor called me to come in earlier for testing my wife was nowhere to be found. at this point my anxieties were already through the roof.
They checked my BP when I arrived as always (for pd plus patients) and my pressure was through the roof. My entire right sight was tremoring and I was have dyskinesia in my neck. This means my head was nodding without me knowing.
Once they saw what was happening to me without any control aside from a palm full of levadopa surgery became a very viable option.
If I have the surgery and it's successful it would reduce my relying on the pills which in turn hurt the old kidneys.
Here's the part they keep in fine print:
The most serious potential risk of the surgical procedures is bleeding in the brain, producing a stroke. This risk varies from patient to patient, depending on the overall medical condition, but the average risk is about 10%. If stroke occurs, it usually occurs during, or within a few hours of, surgery. The effects of stroke can range from mild weakness that recovers in a few weeks or months to severe, permanent weakness, intellectual impairment, or death. The second most serious risk is infection, which occurs in about 14% of patients. If an infection occurs, it is usually not life threatening, but it may require removal of the entire DBS system. In most cases, a new DBS system can be re-implanted when the infection is eradicated. Finally, hardware may break or erode through the skin with normal usage, requiring it to be replaced.
In the first few days after surgery, it is normal to have some temporary swelling of the brain tissue around the electrode. This may produce no symptoms, but it will most likely produce mild disorientation, sleepiness, or personality change that lasts for up to 3 months
.There are several available surgical methods. In the most common method, implantation of the brain electrode is performed with the patient awake (FUCK THAT), using only local anesthetic and occasional sedation. The basic surgical method is called stereotaxis, a method useful for approaching deep brain targets though a small skull opening. For stereotactic surgery, a rigid frame is attached to the patient's head just before surgery otherwise known as a Halo, after the skin is anesthetized with local anesthetic. A brain imaging study (MRI or CT) is obtained with the frame in place. The images of the brain and frame are used to calculate the position of the desired brain target and guide instruments to that target with minimal trauma to the brain. After frame placement, MRI/CT, and calculation of the target coordinates on a computer, the patient is taken to the operating room. At that point an intravenous sedative is given, a Foley catheter is placed in the bladder (FUCK YOU), the stereotactic frame is rigidly fixed to the operating table, a patch of hair on top of the head is shaved, and the scalp is washed. After giving local anesthetic to the scalp to make it completely numb, an incision is made on top of the head behind the hairline and a small opening (1.5 centimeters, about the size of a nickel) is made in the skull. At this point, all intravenous sedatives are turned off so that the patient becomes fully awake. (I DON'T THINK SO)
To maximize the precision of the surgery, we employ a "brain mapping" procedure in which fine microelectrodes are used to record brain cell activity in the region of the intended target to confirm that it is correct, or to make very fine adjustments of 1 or 2 millimeters in the intended brain target if the initial target is not exactly correct. The brain mapping produces no sensation for the patients, but the patient must be calm, cooperative, and silent during the mapping or else the procedure must be stopped. The brain's electrical signals are played on an audio monitor so that the surgical team can hear the signals and assess their pattern. The electronic equipment is fairly noisy, and the members of the surgical team often discuss the signals being obtained so as to be sure to interpret them correctly. Since each person's brain is different, the time it takes for the mapping varies from about 30 minutes to up to 2 hours for each side of the brain. The neurological status of the patient (such as strength, vision, and improvement of motor function) is monitored frequently during the operation, by the surgeon or by the neurologist.
When the correct target site is confirmed with the microelectrode, the permanent DBS electrode is inserted and tested for about 20 minutes. The testing does not focus on relief of parkinsonian signs but rather on unwanted stimulation-induced side effects. This is because the beneficial effects of stimulation may take hours, days, or even months to develop, whereas any unwanted effects will be present immediately. For the testing, we deliberately turn the device up to a higher intensity than is normally used, in order to deliberately produce unwanted stimulation-induced side effects (such as tingling in the arm or leg, difficulty speaking, a pulling sensation in the tongue or face, or flashing lights). The sensations produced at high intensities of stimulation during this testing are experienced as strange but not painful. We thus confirm that the stimulation intensity needed to produce such effects is higher than the intensity normally used during long-term function of the device.
Once the permanent DBS electrode is inserted and tested, intravenous sedation is resumed to make the patient sleepy, the electrode is anchored to the skull with a plastic cap, and the scalp is closed with sutures. The stereotactic headframe is removed. The patient then receives a general anesthetic to be completely asleep for the placement of the pulse generator or pacemaker in the chest and the tunneling of the connector wire between the brain electrode and the pulse generator unit. This part of the procedure takes about 2 hours.
Oh and because I'm fucking bald there will be a visible scar. And they get to fuck with me like a puppet in there. With my luck I'll blowing every doctor in the room for science as the shit bags stand there laughing.
I could hear it now, "make em do it again, make em do it again"! Then they probably wipe that from my memory and all I'm Left with is a sore throat and chapped lips.
I'll get through this, I always do but the timing couldn't be worse.