I don't know how you guys/gals do this. I've only been going thru this for about 4 years now. I'm already ready to call it quits, I've so had enough. And all of you have been suffering with this for so much longer than me. I can't imagine being like this for 10-15 years.
I hear you, and empathise fully. Try not to worry in that way or get bogged down thinking like that. I know its tough. There are ups and downs. Lots of peroids where I have had to dig so deep to find the required resilience to cope and carry on.
I have reached the end of my tether multiple times, and I have lost my mind with stress more times than I can count. That is in a way the worst bit that I would hope to change if I could do things again, it does as much or more harm than the illness itself.
I am getting so close to getting well now. The infections I have now are all very newly acquired, in the last 4 months. It is just a viscious circle at the moment of bad luck due to my compromised immune system resulting in me picking up more infevtions before I have gotten clear.
I just need to keep on, and keep my head together and a bit of luck and I should get there.
I nearly did. At the end of December I was the most well I have been in the whole 12 years. I made a few siilly mistakes since then and had some bad luck and have gone backwards, but it should be an easy fix looking forward.
The hard part for me now is actually believing that things will go right for me, when you are so used to bad luck prevailing like a curse. So I will wait until it happens forst before I anticipate it.
There have been better times, but the last 5 years since 2012, each one was worse and harder than the previous, for 5 years in a row. 2012 was then worst year ever for me, so that says something.
I have NEVER stopped trying everything in my knowedge and power to get better. My problem is the most severe allergy and intolerance problems. I react adversely to almost everything supplement, herb and treatment wise. So this has made treating and curing my conditions very challenging.
For example, I have long running intestinal dysbiosis, low stomach acid, lack of digestive enzymes.
But I cant tolerate any probiotics, digestive enzymes, amino acids, or fermented foods (which cover all of those). I cant take any vitamins or minerals either (except natural iron, vitamin D, vitamin C), and just a very small array of supplements I have found to date I can tolerate.
These are mainly for symptom management (my main serious symptoms are respiratory in nature- every time I eat food my lungs fill up with thick sticky mucus, making breathing very hard. It affects my speech and I will choke on it if I dont clear the mucus from my lungs and throat constantly night and day.
I spend 5 to 7 hours a day aggressively hacking and clearing mucus from my lungs using essential oils and steam inhalations and other methods.
My life revolves around living with and managing these symptoms. My diet is very restricted as most foods are too bad for mucus production. Every food has a varying impact on mucus production, so my diet and mucus management routine is tailored for balance to get as good a diet as possible, and live with the symptoms.
A tough line to draw. I have to be SO strong all the time to keep going. It is like a living nightmare often to accept the reality. I have done an amazing job to get to here, achieve the progress I have, and to learn all that I have done.
I am at the final hurdles. Things can change magnificently in a short snap though. I await this but count on nothing.
I want to encourage you my friend. Please try not to despair. Learn to count your blessings. BELIEVE during the dark times. It makes all the difference.
How many times in your life have you worried about something that proved to be unnecessary? So try to let go of the fear and worry and dread. Dont give up. Strive for perfect health.
I am also allergic to cannabis! Out of everything, if this one thing was different, I could deal with everything else like a walk in the park. I seriously hope this allergy can be resolved once all infections are gone and immune and nervous system are restored to balance.
If there is an infection on a particular place, it can actually cause an allergy that will disappear totally once the infection is gone. So there is great hope for my weed allergy to improve a lot at the very least. It does at better times. I struggle with severe depressiosn without weed and vaporizing is about the only thing I really look forward to, so I put myself through even more hell with mucus, lung congestion and inflammation to vaporize.
I reccomend you to have a look into electromedicine. I adamantly beleive that in virtually all cases of chronic illness, whatever the condition or "label", there arevunderalying chronic infections.
These will very rarely be doagnosed by the allapathic system. They dont want to find the root cause, their testing is simply shit and useless.
I have had all of my infections diagnosed by my brilliant homeopath Natasha in the UK. She uses "Vega testing" to diagnose with 100% accuracy the specific infections in my body, exactly where they are and the homeopathy clears everything, alomg with other approaches.
I have cleared dozens of major infections, the problem is I ahve always gotten more before getting well. But Im so close now.
If you can find a homeopath using vega testing that will be a huge help.
Also please look into "electromedicine". Here is a link to an excellent site with loads of great info on using electricity to heal disease and rid the body of pathogens. With a treatment known as "blood electrification", which clears the bloodstream of all bad microbes, improves blood health, and immune function, amd makes a huge difference to how well you overcome infections.
I started this treatment a year ago and in the last 12 months, despite an optic nerve injury amd a load of terrible fortune causing me to pick up the most new infections ever, I made more progress than ever.
http://www.dragonfly75.com/eng/
Have a thorough look at this site. The guy makes these devices and ships all over, no customs. He gives tons of very detailed info and advice on specific conditions. So browse the site to see if you can pick up some gems and consider the electricity treatments.
That is all, I wish you the vey best. I strongly believe that if you can just find some effective treatments, like the one above, you can get well fairly quickly.
If I knew what I know now at the beginning of my illness, I am certain I would have been well many years ago.
)
