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Fibromyalgia

Discussion in 'Medical Discussion' started by mfletch, Feb 28, 2018.

  1. mfletch

    mfletch New Member

    Messages:
    1
    Hi guys gals just started vaping yesterday and never smoked before so completely new to all this,
    does anyone else suffer with fibromyalgia am on load drugs pain killers but none work so hoping for some tips and advise
    am using a Davici IQ very strong flavours but for the first time user the taste is ok,

    thanks for any replies
     
  2. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    447
    Location:
    So Cal
    Hi, and welcome.

    Yes indeed I think there are plenty of folks who fit this description, myself included (although my diagnosis includes an array of other fun).

    I went through the BigPharma opiates, benzos, muscle relaxers, 'morontin' (neurontin), etc. with my 1st pain management group (a very good one, but they'd never seen the likes of my pain response).
    Not one of them worked, I got all the side effects with NONE of the benefit.

    You're going to have to work with your doctor to wean yourself off of the stuff that hasn't worked, do NOT try to go cold turkey. Also know that medical cannabis can interact with some medications that use a mechanism called the Cytochrome P450 Enzyme, it can be a pain to check out, but if you have a good relationship with your doc, just ask him. This will become more well known as prohibition slowly dies.

    I suggest checking out Leafly.com and their various pages on 'strains' for pain relief or sleep, etc.
    Most of what I use has fairly high amounts of CBD, the last one I got was organic pennywise at a 1-1 ratio of CBD-THC, but I've also been using it for cancer. You might try higher ratio strains like AC/DC or Cannatonic (can be as much as a 20:1 ratio and as low as 8:1, doesn't hit pain as much without more THC, but doesn't 'alter' you as much).

    As for the David IQ, I'm not familiar with it, but I use a Joyetech 'mod box' with Divine Tribe atomizers, and the folk you'll find in the Divine Tribe thread here probably have experience with it (I have no idea what their default atomizer is). I recommend the Divine Tribe stuff, very good and good support. They make concentrate atomizers primarily but also have a popular vape for flowers which I haven't yet tried.

    I wish you healing.
     
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  3. Winegums

    Winegums I make things from wood Accessory Maker

    Messages:
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    Location:
    The Fraser Valley
    My dad takes CBD drops orally to help with his FM. I’m going to try and find something with a bit of THC to go with the CBD and see what amount works. He’s very sensitive to THC and easily gets anxiety from it so it’s a very fine line to walk.
     
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  4. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    447
    Location:
    So Cal
    you'll probably find that the CBD will modulate the THC and hopefully make it far less agitating for him.
     
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  5. CarolKing

    CarolKing Singer of songs and a vapor connoisseur

    I have been suggested to that I have fibromyalgia. Sometimes I feel it’s a catch all phrase when they don’t know what’s wrong with you. I happen to have arthritis throughout my body. I tried a high CBD strain it was 14% CBD and 8% THC I didn’t notice any miraculous help with my pain. High THC and some hybrids do well for me. We’re all different.
     
    Last edited: Mar 1, 2018
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  6. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    447
    Location:
    So Cal
    <- Fibro BIG time after a major auto accident lit me up like a christmas tree.
    (somehow I've been a magnet for being struck from behind at traffic lights!)

    Probably the most common source of FM in men as a trigger is major physical trauma, whereas women comprise the majority of FM patients. They don't understand everything behind it (much like chronic fatigue syndrome used to be, now they are starting to crack that, which ALSO used to be labelled a 'trashcan diagnosis') :(

    Check yourself against the 'constellation of symptoms' for FM.
    You may be surprised at the number of them that fit.

    I've found better response from whole plant extracts, where all the compounds are preserved... but it's far more difficult to find unless you make your own. It's a low-temperature approach that preserves everything (eg: THC THCa CBD CBDa THCv CBN CBC CBG terpenes, etc.), there is clearly a value to the 'entourage effect' with -all- the compounds. The potential for tinkering with this for 'tuning' as we understand the compounds better and can shift the ratios intelligently is pretty monumental. Presently it's a giant pain tho :(

    Sadly, in CA presently it's a clusterf* :(
    Most edible manufacturers (at least the ones I used) don't yet have their packaging ready, and for some patients these 10mg 'pieces' are farcical (as someone who regularly bought 1g brownies and made 6 doses out of them). Still difficult to find organic grows (hopefully that will change if the growers who were burned out in the fires are able to come back).

    Haven't been able to find my favorite CO2 oil, cleaned out their supply of pre-2018 stuff.
     
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  7. Boden

    Boden Aspie polymath

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    Location:
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    Stay away from opates. One of the most common causes of FM. Organic solvents can also strip the protective layer off nerve cells. So stay away from Acetone.
     
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  8. invertedisdead

    invertedisdead trance-form

    Messages:
    3,354
    Location:
    Colliefornia
    Fibromyalgia is inflammation, in my experience the first way to control it is healthy dietary choices.
     
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  9. Winegums

    Winegums I make things from wood Accessory Maker

    Messages:
    1,701
    Location:
    The Fraser Valley
    Thanks all for the insight,

    If anyone has a solution or something to help I would be happy to hear it. It's really stolen my Dad's energy and vibrancy.
     
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  10. invertedisdead

    invertedisdead trance-form

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    Location:
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    Winegums likes this.
  11. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
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    Location:
    So Cal
    exactly what does that mean?

    Diabetes is inflammation, Alzheimers is inflammation.

    FM certainly contains inflammation of many kinds, but if you study the constellation of FM symptoms, how does that factor into 'fibro fog' or mixed IBS (pull the slot lever try your luck, see what you get)?

    I don't disagree that investigating/changing diet is a good idea, but I'm not sure that would change the micro-glia in my nervous system (which there are vastly more of in FM patients, and it tends to AMPLIFY signals in the pain pathways).

    Boden, the pain management group I went to tried every opiate on the planet on me, none of them worked (although I got ALL the side effects).

    Invertedisdead, Has CBD helped her fibro and RLS?
     
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  12. invertedisdead

    invertedisdead trance-form

    Messages:
    3,354
    Location:
    Colliefornia
    I would not classify diabetes as inflammation. I've got a great video on the mechanisms behind type 2 diabetes if you are interested. I've personally reversed my prediabetic condition and helped multiple family members reverse their type 2 diabetes. Most don't understand what causes it. It's always about treating the underlying condition, instead of symptom management which most FM work in the medical paradigm seems to be based around.

    You mention the nervous system, but have you considered the lymphatic system?

    I'm going to be honestly blunt when I say that most would rather die than make the extreme dietary changes necessary to heal conditions like these.

    CBD seems to be helping to some degree for sure. Though I'm not a huge fan of isolated compounds as they lack the synergistic properties a full spectrum plant medicine provides. I would like to try more full spectrum CBD products. She actually cleared all this up when she strictly following the meal plan I set her up on. The way she eats now certainly makes it impossible for a person to heal.
     
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  13. Boden

    Boden Aspie polymath

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    Location:
    In the shop
    The pharmaceutical industry will actively squash any study that gets close to the real answer. Since it’s their fault.

    A very good friend of mine runs The Center For Aging at the University of KY and was threatened to have all funding revoked if she published her study on opate erosion of the nervous system and side effects (which included FM). Years of testing down the drain. She cried for days when she realized how corrupt the medical establishment was.

    I would say that limited exercise plays a large part in lymphatic disfunction. Since most of the pumping is linked directly to body movement.

    I agree that diet is a huge factor for most people in general especially sugars (including refined carbs).

    I’m very in shape. (I wear out a border collie every day)
    I feel like crap if I eat too much fast carbs without burning them right away.

    I think most people are so sick from their diet that the slight pleasure they get from carbs is noticed while the feeling of damage that it causes blends in to all the pain they already have.

    Very much a drug addiction.
     
    Last edited: Mar 1, 2018
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  14. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
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    Location:
    So Cal
    Everything I'd read up to now pointed at both those diseases being linked and at their core, inflammatory.

    I had indeed considered the lymphatic system! :) My bodyworker is skilled in a number of modalities, lymphatic massage being among them (but she is insanely good at this hybrid she created incorporating rolfing). Haven't been able to do it much since the chemo... need to buy a used table and beg her to come treat me here (I'll buy you dinner and pay for your gas in addition to her normal fee).

    Food is a difficult area, being bound up in emotions, traumas. Territory I know a bit.

    I'd love the link, always open to learning.

    Whole plant extracts are preferred, I'd try an AC/DC (around 20:1 last I bought) or Cannatonic (around 8:1 last I bought), allowing for various phenotypes that might grow and 'varietal drift'.
    AC/DC probably won't alter her at all, Cannatonic mildly.

    Brother and niece arriving soon to help me make a batch of brownies (organic pennywise, 1:1 ratio, nice), will be spiking it with both some 4:1 CBD concentrate and some GDP and Blue Dream (all CO2 process).

    Still waiting for better CO2 oils that don't wipe the terpenes, and labs that include them as well as THC, THCa, CBD, CBDa, THCv,CBN, CBC, CBG (off the top of my head).

    think good thoughts for the folks in the burn areas of CA tonight, hasn't been much time for anything to grow to hold the hills together.
     
  15. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    447
    Location:
    So Cal
    yup, foisted on us by folks who's only goal was to increase their yield of green :(
     

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