1. What does SSTB mean? See our glossary of acronyms.
    Dismiss Notice

Fibromyalgia and Medical Marijuana

Discussion in 'Medical Discussion' started by nickdanger, Mar 28, 2017.

  1. nickdanger

    nickdanger Collector of Functional Art

    Messages:
    388
    Location:
    Fly-over Country
  2. cobra505

    cobra505 Defined

    Messages:
    349
    Location:
    Massachusetts
    I just posted this on my FaceBook Page.
    1. Cleaning
    I wrote a whole post dedicated to cleaning with chronic illness for a reason. When your body isn’t functioning well cleaning is exhausting. I have a huge living room floor that I almost never mop because it’s drains me completely. It takes me a good 45 minutes to clean and then I’m pretty much done for the rest of the day. Unfortunately for me my floor needs to be cleaned a lot, and I can never keep up. So it isn’t unusual for someone with chronic illness to have a house that isn’t spotless.

    2. Weather
    Where I live the weather yo-yos back and forth so fast you practically get whiplash. While this is inconvenient for healthy people (it wreaks havoc on allergies), it’s even harder when you live with pain. My pain levels are always higher when the weather does this. Heat and humidity also raise my pain levels significantly and many people with chronic pain struggle with winter and lower temperatures.

    3. Getting ready for the day
    I often tell my husband that getting ready to go somewhere is worse than actually going somewhere. Although I’ve loosened up on my perfectionist standards of appearance since I got sick, there are still lots of social rules I feel obligated to follow. Just a few examples of the basic tasks that can be daunting to someone with chronic illness: showering, blow drying hair, putting on makeup, and wearing socially acceptable clothes that don’t make the pain worse.

    4. Regular sickness
    For healthy people getting a cold is miserable, for people with chronic illness it can take over your life for weeks even months. When you’re barely functioning as it is, additional sickness can knock you out completely.

    5. Driving
    A normal every day task that most people take for granted. When you have a chronic illness driving can be agonizing if you are forced into an uncomfortable position and it can cause vertigo if you suffer from it.

    6. Going shopping
    Very few people like going to the store, but for someone with chronic illness it’s exhausting. Not only does it involve getting ready, but parking and walking to the store, walking around the store, dealing with the bright lights, bending over to get things from shelves, carrying heavy groceries etc.

    There are so many everyday things that are taken for granted by healthy people, but present large obstacles to people in pain. Because of this those in pain are in need of understanding and support. No one wants go cancel an event because they are too tired to get ready, but sometimes they have to.
     
    kushkush, ataxian, Alexis and 5 others like this.
  3. nickdanger

    nickdanger Collector of Functional Art

    Messages:
    388
    Location:
    Fly-over Country
    Unfortunately, FM (along with chronic fatigue) is a common syndrome that is in many cases connected to Lyme disease. Most Lyme goes undiagnosed due to ignorance or avoidance by the medical community. It can be a debilitating, multi-faceted disease.
     
    ataxian, Alexis, Winegums and 3 others like this.
  4. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    698
    Location:
    So Cal
    FM on it's own is no picnic :(

    We have similar weather in So Cal (at least we did this past winter!),
    but we've got a regular cycle of santa ana winds that are just excruciating :(

    I wrote a little paper called 'the Invisible Patient' that I used to hand to the doctors.

    So what have you found in the medical cannabis products that seems to help you the most with your FM?
     
    ataxian, Alexis, Winegums and 2 others like this.
  5. nickdanger

    nickdanger Collector of Functional Art

    Messages:
    388
    Location:
    Fly-over Country
    I live in an illegal state, so medical products are not available to me. I travel to a legal state to buy, and it's recrational herb. I primarily like the indicas or hybrids, as the sativas can give me anxiety which adds to the pain. I like the sativas if I'm active, such as walking my dogs or doing yardwork, but I find they can produce anxiety if I'm trying to relax.

    I've also found that diet plays an important role in easing the pain. When I eliminate sugar and grains (and basically all fabricated/packaged foods) it helps greatly. This has also eliminated many of my gut issues which were most likely caused by bad diet and antibiotic treatments previously used for Lyme. I now treat annually (or whenever symptoms re-appear) with frequency therapy which has been a lifesaver.
     
    ataxian, Alexis and Winegums like this.
  6. Winegums

    Winegums I make things from wood Accessory Maker

    Messages:
    1,754
    Location:
    The Fraser Valley
    I'll be following this thread as my Dad has FM and had tick bites/possible Lyme in the past. I'd do anything to get him more functional as his pain seems to take the energy right out of him. I'm going to try him on micro dosed edibles since inhalation of weed is too potent too quickly for him.
     
    Last edited: Mar 30, 2017
    ataxian and nickdanger like this.
  7. cobra505

    cobra505 Defined

    Messages:
    349
    Location:
    Massachusetts
    I've had FB for over 5 years now. Had Lyme for about 3 years now. Did you know in 2014 they came out with a list of anti bio-tics labeled "FLQ's. You might want to do some research on this. FLQ's were found to be a list anti biotics that cause sever nerve damage among other things. They also destroy the immune system.
    http://www.vanweylaw.com/dangerous-flq-antibiotic-warning-labels-reevaluated-by-fda/
    I was treated with Lyme back in 2012 by a Massachusetts hospital. I was treated by there ER. I have been trying to get a copy of what they gave me in the ER for anti biotics, they don't even have a record of me being there. Which is weird because if you look at any of their other records it does show that I have a history of Lyme but no record that I was treated there.
     
  8. nickdanger

    nickdanger Collector of Functional Art

    Messages:
    388
    Location:
    Fly-over Country
    The quinalones (FLQ) antibiotics are indeed deadly. They were not using those to treat Lyme back when I was diagnosed, but they may be doing so now. I cannot imagine any doctor using those due to the horrific side effects, and the availability of so many others that do not cause the tendon tears. It's a shame, but you really have to do your own research and be your own advocate, as the doctors primarily only know what a pharma rep tells them about the drugs they sell. The allopathic medical system is broken IMO. OK, off my rant...
     
    Silver420Surfer, Squiby and Alexis like this.
  9. cobra505

    cobra505 Defined

    Messages:
    349
    Location:
    Massachusetts
    A few months ago I did do a lot of reading on them. They stopped around early 2014. I had Lyme in 2013.
     
  10. Alexis

    Alexis Well-Known Member

    Messages:
    2,445
    It isnt broken, it is perfectly formed for providing VERY LITTLE real actual help for anybody, while pretending to offer hope for desperate people.
    It is very successful at deterring people away from helping themselves with treachery and lies, brainwashing millions in the process.

    Sure, there are flaws in it, it is nowhere near as effective as they would like at scooping up ALL the sick fish and keeping them in one place with no real chance of getting well eventually.

    Too many slip through the net for their liking, so yes in that sense, the net needs mending.

    The bastards! Rant not over... I also had Lyme, I still have it in my view, the "Borellia" bacteria is gone now, but my immune system and nervous system are still in a "dsyregulated" state, which in my unerstanding is essentially what "Lyme disease" is.

    This can only be corrected once all my other infections afe gone, mainly "coxsackie viruses", also based in the central nervous system.

    Rant over...(for now)!

    Edit- by the way, I cleared the Borellia completely without any antibiotics, using prescribed homeopathy and a range of other approaches.
     
    Last edited: Mar 30, 2017
  11. cobra505

    cobra505 Defined

    Messages:
    349
    Location:
    Massachusetts
    God, I couldn't have stated it better.
     
    Squiby and nickdanger like this.
  12. Alexis

    Alexis Well-Known Member

    Messages:
    2,445
    Believe me I know their game VERY well. I see it everywhere in society, the artificial fabricated view of the world they push on us all, the billions of strings they pull from up above.

    It drives me MAD! I long for them to be exposed. It is so hard knowing the truth, when the vast majority have been so brainwashednand think I am crazy.

    Awareness is definitely not bliss, especially when you are too unwell to do anything about it.
     
  13. nickdanger

    nickdanger Collector of Functional Art

    Messages:
    388
    Location:
    Fly-over Country
    Yes, this is actually what I meant, but was being too simplistic in my answer. It is in the medical/pharma industry's best interest to keep everyone sick and on long term meds. They make no money by curing anything, and strive for lifelong maintenance of chronic problems on expensive, harmful medications.
     
  14. Alexis

    Alexis Well-Known Member

    Messages:
    2,445
    Sure thing. I wish the net would break though, it wont be soon enough.
     
    ataxian likes this.
  15. damm

    damm Well-Known Member

    Messages:
    298
    Location:
    Pacific Northwest
    Sounds familiar....

    It's hard enough to clean but when you are in pain and cleaning; it becomes so much harder to do. Little things fall away first and eventually it's all about cleaning your little own area to be comfortable.
    Very much so; when you have a chronic migraine the weather only crushes to the left or the right or the front or the back. Allergies are just an annoying scratch that doesn't stop itching

    Yeah I remember when it was like that. Now it's loose fitting clothes that don't rub the wrong way.

    It's a good day when there's at least a 2-4hours of uninterrupted sleep ...
     
    ataxian and Squiby like this.
  16. Alexis

    Alexis Well-Known Member

    Messages:
    2,445
    I feel you all who live with chronic illness. It can be a very isolating affair, as the whole way of life is so different to what most people can relate to. Nothing is ever easy, in fact often nothing is possible, except absolute necessities. Literally, for long periods of time! Like years!

    I actually look very well and very healthy and also very young for my age. This is all a result of strong discipline and clean eating, aiming to be the most well and healthy I can be.

    And I mean in a totally sane way. The common slogan "I've gotta die of something", is an insane way of thinking.
    We should he taught this basic sanity at school of course.

    But illness can sometimes wake people up. I was lucky, because the Lyme Disease forced me to have to eat clean, natural, whole food, and seek the best health possible.

    To disregard health is insane, one just doesnt understand that at times, and it is practically culture!!

    I became so sensitive to man made, fake, toxic poison food and all bad stuff of man- Im like a minimg canary for what is not right for us full stop. So my witts were firmly forced back into me, and providing I can recover sufficiently in time, I will have gained an awful lot and inherited a grand education (hopefully to put to use by helping to derail the establishment (sshhh!))

    My point- living healthily pays off- you look healthy. So people who lack intuition and understanding, and ignorant because they have never been unwell, and they can smoke and eat this, and that so why cant I...

    These people often dont believe I am ill. Because they cant see it. Family can be worse than friends because they can be less accepting, more opinionated and uncompromising.

    So at times I feel like I am in court trying to prove to them with words that I am unable to work.
    It is so so infuriating. For a start, when you are unwell your brain is not working, and the worse you are the harder it is to explain it and argue it convincinglyl which is the only way you can ever WIN this court case (I like to call it a "tribunal").

    It is just impossible for words to convey to them just what it is like with my illness. Not like anything I ever could have related to or understood before being ill.

    I can relate to this for sure. I used to hoover the whole house once a week to help my mum out, until 2012. My illness came in 2005, and was tough enough,,vut in 2012 my chronic fatigue condition jumped up heavily due to viral infections.

    Ever since then, hoovering the whole house is outright impossible. I might manage the upstairs rooms once or twice a year at the best times (summer), but through the winters I go 4 or 5 months where it is impossible for me to even attempt to hoover my bedroom, due to such debilitating fatigue.

    So I hear you all. We all have very individual experiences that are so very intense and testing- yet I feel we can all relate, which is a nice feeling bizzarely!

    Im sorry everybody, I dont know why I said all that. Or if this is the totally wrong place (whoops!:doh:)
    Again, I feel I must blame the edibles!:nod:
     
    ataxian and Receptor like this.
  17. cobra505

    cobra505 Defined

    Messages:
    349
    Location:
    Massachusetts
    I don't know how you guys/gals do this. I've only been going thru this for about 4 years now. I'm already ready to call it quits, I've so had enough. And all of you have been suffering with this for so much longer than me. I can't imagine being like this for 10-15 years.
     
    ataxian, Squiby and Alexis like this.
  18. Alexis

    Alexis Well-Known Member

    Messages:
    2,445
    I hear you, and empathise fully. Try not to worry in that way or get bogged down thinking like that. I know its tough. There are ups and downs. Lots of peroids where I have had to dig so deep to find the required resilience to cope and carry on.

    I have reached the end of my tether multiple times, and I have lost my mind with stress more times than I can count. That is in a way the worst bit that I would hope to change if I could do things again, it does as much or more harm than the illness itself.

    I am getting so close to getting well now. The infections I have now are all very newly acquired, in the last 4 months. It is just a viscious circle at the moment of bad luck due to my compromised immune system resulting in me picking up more infevtions before I have gotten clear.

    I just need to keep on, and keep my head together and a bit of luck and I should get there.
    I nearly did. At the end of December I was the most well I have been in the whole 12 years. I made a few siilly mistakes since then and had some bad luck and have gone backwards, but it should be an easy fix looking forward.

    The hard part for me now is actually believing that things will go right for me, when you are so used to bad luck prevailing like a curse. So I will wait until it happens forst before I anticipate it.

    There have been better times, but the last 5 years since 2012, each one was worse and harder than the previous, for 5 years in a row. 2012 was then worst year ever for me, so that says something.

    I have NEVER stopped trying everything in my knowedge and power to get better. My problem is the most severe allergy and intolerance problems. I react adversely to almost everything supplement, herb and treatment wise. So this has made treating and curing my conditions very challenging.

    For example, I have long running intestinal dysbiosis, low stomach acid, lack of digestive enzymes.
    But I cant tolerate any probiotics, digestive enzymes, amino acids, or fermented foods (which cover all of those). I cant take any vitamins or minerals either (except natural iron, vitamin D, vitamin C), and just a very small array of supplements I have found to date I can tolerate.

    These are mainly for symptom management (my main serious symptoms are respiratory in nature- every time I eat food my lungs fill up with thick sticky mucus, making breathing very hard. It affects my speech and I will choke on it if I dont clear the mucus from my lungs and throat constantly night and day.

    I spend 5 to 7 hours a day aggressively hacking and clearing mucus from my lungs using essential oils and steam inhalations and other methods.

    My life revolves around living with and managing these symptoms. My diet is very restricted as most foods are too bad for mucus production. Every food has a varying impact on mucus production, so my diet and mucus management routine is tailored for balance to get as good a diet as possible, and live with the symptoms.

    A tough line to draw. I have to be SO strong all the time to keep going. It is like a living nightmare often to accept the reality. I have done an amazing job to get to here, achieve the progress I have, and to learn all that I have done.

    I am at the final hurdles. Things can change magnificently in a short snap though. I await this but count on nothing.

    I want to encourage you my friend. Please try not to despair. Learn to count your blessings. BELIEVE during the dark times. It makes all the difference.

    How many times in your life have you worried about something that proved to be unnecessary? So try to let go of the fear and worry and dread. Dont give up. Strive for perfect health.

    I am also allergic to cannabis! Out of everything, if this one thing was different, I could deal with everything else like a walk in the park. I seriously hope this allergy can be resolved once all infections are gone and immune and nervous system are restored to balance.

    If there is an infection on a particular place, it can actually cause an allergy that will disappear totally once the infection is gone. So there is great hope for my weed allergy to improve a lot at the very least. It does at better times. I struggle with severe depressiosn without weed and vaporizing is about the only thing I really look forward to, so I put myself through even more hell with mucus, lung congestion and inflammation to vaporize.

    I reccomend you to have a look into electromedicine. I adamantly beleive that in virtually all cases of chronic illness, whatever the condition or "label", there arevunderalying chronic infections.

    These will very rarely be doagnosed by the allapathic system. They dont want to find the root cause, their testing is simply shit and useless.

    I have had all of my infections diagnosed by my brilliant homeopath Natasha in the UK. She uses "Vega testing" to diagnose with 100% accuracy the specific infections in my body, exactly where they are and the homeopathy clears everything, alomg with other approaches.

    I have cleared dozens of major infections, the problem is I ahve always gotten more before getting well. But Im so close now.

    If you can find a homeopath using vega testing that will be a huge help.

    Also please look into "electromedicine". Here is a link to an excellent site with loads of great info on using electricity to heal disease and rid the body of pathogens. With a treatment known as "blood electrification", which clears the bloodstream of all bad microbes, improves blood health, and immune function, amd makes a huge difference to how well you overcome infections.

    I started this treatment a year ago and in the last 12 months, despite an optic nerve injury amd a load of terrible fortune causing me to pick up the most new infections ever, I made more progress than ever.
    http://www.dragonfly75.com/eng/

    Have a thorough look at this site. The guy makes these devices and ships all over, no customs. He gives tons of very detailed info and advice on specific conditions. So browse the site to see if you can pick up some gems and consider the electricity treatments.

    That is all, I wish you the vey best. I strongly believe that if you can just find some effective treatments, like the one above, you can get well fairly quickly.

    If I knew what I know now at the beginning of my illness, I am certain I would have been well many years ago.
     
    Last edited: Mar 31, 2017
    C No Ego likes this.
  19. cobra505

    cobra505 Defined

    Messages:
    349
    Location:
    Massachusetts
    I'll look it over thank you
     
    ataxian likes this.
  20. Alexis

    Alexis Well-Known Member

    Messages:
    2,445
    I just corrected all the typos in case didnt follow any of that. Im REAL bad for typos! Good luck!
     
    ataxian likes this.
  21. damm

    damm Well-Known Member

    Messages:
    298
    Location:
    Pacific Northwest
    I agree and empathize completely. My other half who has had it for the past 14+ years has been honest about being suicidal at times. To the point of walking away (and coming back). It's very rough; the only thing that holds her together is her children and love. Without someone there to hold your hand and help you through those times; it can be very dark and bleak.

    It doesn't help that Bipolar is in the mix; so sometimes on the upswing things would look so great she would almost forget the pain.

    Worst part is Fibro to me is pretty legit and real; but to her doctors they're looking for MS or Lyme disease or something else they can assign a disability status to. It takes her 30-45 minutes to do the dishes that it takes me 5-10 minutes to do :(

    I don't say that to beat her or congratulate myself; it's just a sign of how hard it is for her. I just try to always keep an open ear to listen and be helpful at a moments notice.

    Edit:

    Additionally as far as helping; when it gets bad RSO oil (or activate hash oil) is our best method. Topical application on sore muscles that are bound and knotted. Starting out with a half grain of rice in a few spots to start waiting 30 minutes and then touching up as needed.

    Typically after I do that treatment a real good night sleep happens.

    Girl Scout Cookies can be quite amazing as Hash Oil :)
     
    Last edited: Mar 31, 2017
    ataxian and Alexis like this.
  22. ataxian

    ataxian PALE BLUE DOT

    Messages:
    11,827
    Location:
    Pacific Ocean
    My favorite strain is GIRL SCOUT COOKIES.
    OIL, SHATTER, CRUMBLE, KIEF, COLAS

    One of my kids suffers from FIBRO;
    GAME CHANGER seems to be the one that works!
     
    lazylathe likes this.
  23. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    698
    Location:
    So Cal
    Has he been evaluated for Lyme??? It doesn't go away without treatment!
     
  24. Winegums

    Winegums I make things from wood Accessory Maker

    Messages:
    1,754
    Location:
    The Fraser Valley
    It's very possible that he has Lyme from a tick bit he received quite a few years ago. He got checked out but the docs say it isn't Lyme? Part of me thinks he should get some more opinions.
     
    Alexis and looney2nz like this.
  25. looney2nz

    looney2nz Research Geek, Mad Scientist

    Messages:
    698
    Location:
    So Cal
    indeed!
     
    Alexis likes this.

Support FC, visit our trusted friends and sponsors