Hi all, I know there's two older threads about this topic. I'm writing this because I also have this disease and I'm thinking that vaporizing MJ may help with the symptons. I just wanted to ask to people like me how long have you been vaporizing and how this medical use of MJ is working out for you. Thank in advance, and apologize for my english.
Cystic Fibrosis
- Thread starter Rayc8
- Start date
I'll be honest, I'm not entirely sure how vaporization could either positively or negatively affect your symptoms. How severe is the cystic fibrosis that you currently suffer from? Do you constantly have to deal with fluid buildup in your lungs as some sufferers do, or is it less of a tangible buildup in your lungs? The reason I ask is because vaporization does introduce a great amount of moisture to your lungs, which might be detrimental to your condition.
That being said though, it also may have a positive effect. I know it's probably not what you want to do, but I think you should speak to your specialist, as they'll know most about your specific condition and how this could affect it. As well, if you haven't looked into this already you should look into edible or topical preparations, as they also have very useful medical effects with little in the way of the side effects caused by inhaling.
That being said though, it also may have a positive effect. I know it's probably not what you want to do, but I think you should speak to your specialist, as they'll know most about your specific condition and how this could affect it. As well, if you haven't looked into this already you should look into edible or topical preparations, as they also have very useful medical effects with little in the way of the side effects caused by inhaling.
Hi CentiZen, thanks for your answer.
Well, I do have to deal with some mucus buildup in my lungs everyday. In fact, I have an inhaled treatment to help me with that (twice a day). However I get my airflow restricted on daily basis and this makes me cough and have troubles to sleep. I do not consider my disease so severe because despite all I've said I have a "normal" life.
About the moisture I didn't get your point. Do you consider that moisture (that means "humidity", right?) would affect my lungs negatively? How come? Do you mean moisture could act as a bacterial focus? As far as I know, humidity may be good in order to "fluidize" the mucus buildup. I live on an island so humidity is pretty high around here.
I'll probably do what you suggest and talk to my specialist. I just wanted to know about some real expirience given that there's no information on this subject (medical marijuana and CF) at all. I tried edible and vaporization once (impossible to get a conclusion). I did feel some bronchodilation but, further than that, long term effects are completely unkown for me.
Thanks again.
Well, I do have to deal with some mucus buildup in my lungs everyday. In fact, I have an inhaled treatment to help me with that (twice a day). However I get my airflow restricted on daily basis and this makes me cough and have troubles to sleep. I do not consider my disease so severe because despite all I've said I have a "normal" life.
About the moisture I didn't get your point. Do you consider that moisture (that means "humidity", right?) would affect my lungs negatively? How come? Do you mean moisture could act as a bacterial focus? As far as I know, humidity may be good in order to "fluidize" the mucus buildup. I live on an island so humidity is pretty high around here.
I'll probably do what you suggest and talk to my specialist. I just wanted to know about some real expirience given that there's no information on this subject (medical marijuana and CF) at all. I tried edible and vaporization once (impossible to get a conclusion). I did feel some bronchodilation but, further than that, long term effects are completely unkown for me.
Thanks again.
AdmiralAlpacha
Well-Known Member
I don't have cystic fibrosis, but I have numerous other lung diseases, some of which share some very common characteristics with cf. I think that cannabis helps a lot with side effects from medications and from having a terminal disease, however I do think it negatively effects my breathing.
I don't think it is very wise to put your lungs through it if you have lung diseases, but you'll have to weigh the benefits and negatives for yourself.
I've found a few days a week is the right balance for me, too much and my lungs suffer, too little and my quality of life suffers.
I don't think it is very wise to put your lungs through it if you have lung diseases, but you'll have to weigh the benefits and negatives for yourself.
I've found a few days a week is the right balance for me, too much and my lungs suffer, too little and my quality of life suffers.
AdmiralAlpacha
Well-Known Member
My doctors are still debating on my official diagnosis but I have copd, emphysema, and broncholitis obliterans. They all relate to damage and scarring of the lungs, I have about 17% total volume.
I prefer vaping by a large margin, but use edibles to give my lungs a break. I use cannabis mostly for relaxation I find the whole act of vaping very relaxing. Edibles can also sometimes give me a little stomach pain, I'm still experimenting to find a good balance though.
I prefer vaping by a large margin, but use edibles to give my lungs a break. I use cannabis mostly for relaxation I find the whole act of vaping very relaxing. Edibles can also sometimes give me a little stomach pain, I'm still experimenting to find a good balance though.
AdmiralAlpacha
Well-Known Member
No problem, I understand the trouble of finding relatable information.
Unfortunately I have not brought it up to my doctor yet. I'm working to get on the transplant list, and cannabis is still illegal where I live, so I haven't mentioned it. I might change that soon, because like you I would really like some specialized advice on the subject. So far I only have my own experience and observations.
Unfortunately I have not brought it up to my doctor yet. I'm working to get on the transplant list, and cannabis is still illegal where I live, so I haven't mentioned it. I might change that soon, because like you I would really like some specialized advice on the subject. So far I only have my own experience and observations.
I'm glad you found some balance and hope you to be better (whether you get finally transplanted or not). Next time I talk to my doctors I'll ask him about it. I'll write back on this thread and tell you what he said to me. I assume he'll say "no" categorically (at least regarding to vape), but you never know, right?
AdmiralAlpacha
Well-Known Member
Yep especially if you are in a medical area, it can't hurt to ask. I'd really appreciate it if you shared his response. And thanks for the good wishes, best of luck to you as well.
llama1892
Aaron Rodgers Afficianado
Hey Ray, I also have Cystic Fibrosis and posted a thread a while back and didn't get much feedback. Seems like we have pretty similar cases, I have a "normal" life apart from doing my vest and nebulizer twice a day. I haven't brought it up with my doctor because I am afraid of the implications in the chance (more like when) I need a transplant later in life. As of now I am regularly exercising and vaping (vape probably around 4 times a week). I go back for my next check up in may and I am eager to see how my FEV1 has changed. Over the past year it has stayed pretty steady while I had vaped and smoked. But since switching only to edibles and vaping, hopefully I will see some improvement or stability!
I think you just have to weigh the positives and negatives about how it helps you. As you know weight gain is a huge problem for us CFers, and this has helped me most with that. Between 2 appointments ( 3 months apart Idk about yours) I gained around 4 or 5 pounds which was a lot for me. I now weigh 155 at 18 years old. I plan on continuing my own little "experiment" to see how it affects me over time.
AdmiralAlpacha
Well-Known Member
Didn't think to mention that, I take my own fev1 readings pretty much daily, and my doctor does them every month or 2. For the past two years I have been vaping mostly every day and my fev1's have not decreased or improved.
I have been trying to cut down to vaping 3-4 times a week and using edibles more just because I figure it couldn't hurt.
I have been trying to cut down to vaping 3-4 times a week and using edibles more just because I figure it couldn't hurt.
llama1892
Aaron Rodgers Afficianado
If you don't mind me asking what device do you use to take your FEV1? I'd totally be interested in getting one!
AdmiralAlpacha
Well-Known Member
This is the one I use here. I got it for free through my insurance so you might want to check with your doctor before spending your own money on it.
http://www.amazon.com/PiKo-1-Electronic-Peak-Flow-Meter/dp/B0002W2A1I
llama1892
Aaron Rodgers Afficianado
Oh okay awesome. Yours works well? No complaints?
AdmiralAlpacha
Well-Known Member
No complaints, I'm not sure how accurate it is (but also no reason to think it isn't) it is great to monitor yourself with.
It advertises that it stores previous readings, but I can't find out how to access this; so I'm not sure if it does.
It advertises that it stores previous readings, but I can't find out how to access this; so I'm not sure if it does.
OO
Technical Skeptical
I find that in most instances that the opposite is true, and that it removes moisture from the lungs.
Except when they are more interested in federal law, or covering their asses.