@bellas @haydenxxl I have been through most medications, steroids are just nasty, currently on azathioprine (immunosuppressant), which leaves me feeling run down and incredibly tired. I've settled on potatoes as being fairly benign, garlic and onions seem to be potential triggers (although nothing and anything can seem to set things off) but it's been incredibly hard to nail down, garlic and/or onion are in a lot of stuff and it's almost impossible to avoid without going to a totally bland diet or cooking everything from scratch, which you don't necessarily have the energy or inclination to do in the middle of a flare up, when I do have the energy I have to contend with being a terrible cook.
I don't eat out much, or go out much, I have to pick and choose the times and events that I go to because it *will* make me more ill for weeks afterwards, not sure if that's the crohns, ibs or a bit of both, either way there's a price to be paid for having fun :/ I've been diagnosed about 5 or 6 years now (it was a long time being diagnosed after I presented to my doctor for the first time, ) but was probably suffering and didn't know it up to 10 years before I went to my doctors. During that time it put a lot of stress on relationships, arranging to go out and do things then not being able to because I was incapacitated and got very very fussy about food
One of the big problems for crohns is apparently smoking tobacco, I'd been a smoker for 30 years until a month ago. Since I've given up I feel mentally brighter in myself but still struggling with a massive lack of energy, probably attributed to a terrible sleep pattern and waking up randomly, trying to sleep with cramps/stomach ache is a pita, sometimes literally.
I'm now combustion free, I vape at the moment, that may change as I do more research.
