CVS Sufferer
Member
WOW, a great person to speak to Vomiter!
Sorry to read of what you have gone through, but it sounds very similar to CVS. You say you have looked into CVS, have you seen the thread on the message board?. Our CVS doctors dont think there is any links whatsoever between cannabis and CVS, here is a statement made only last month due to the bad press on these types of forums -
“Recently, there has been considerable controversy over the role of cannabis in these patients. While “cannabinoid hyperemesis syndrome” has been touted as a new diagnosis, there does not appear to be sufficient data to implicate marijuana as a “cause” of CVS. In a recent review of 31 published cases, the average duration of marijuana use preceding onset of vomiting was just over 10 years; the long delay in presentation of symptoms following chronic marijuana use argues against cannabis being a cause for the vomiting. Also, long-term follow-up is lacking in case series of patients with “cannabinoid hyperemesis.” The acute administration of marijuana has been shown in animal studies to stop vomiting and cannabinoid agents such as dronabinol and nabilone have been used to treat nausea and vomiting due to chemotherapy. The effects of chronic marijuana use are poorly understood and whether marijuana use unmasks CVS is unclear; further prospective studies are warranted to address this issue. We currently recommend abstinence of marijuana while treating patients with CVS as this is a risk factor for nonresponse to conventional medications.”
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It would be really helpful if you could come and tell your story on the CVSA message board. I am certainly in no position to argue with you, quiting cannabis has clearly helped you.....it would just be great if you could come and tell your story officially on there. Doctors patients and carers alike read that message board and may just learn something from you. Every piece of evidence shows that cannabis does not cause CVS but you are clearly the one exception!
Do you think cannabis caused your CVS? Or cannabis caused your CVS like symptoms? If the latter, what symptoms were different? Like I said mate, in the nicest way possible it is people like you who are causing problems for genuine CVS sufferers in ER's so it would be great if you could come forward and tell your story officially, we might just learn some actual differences in symptoms!
Your story though unfortunately has been copied and pasted a few times over the CHS threads. I am not saying yours isnt true ofcourse however it is very similar. Everyone who claims to suffer from CHS all follow a standard form - Smoking since age 13/14, vomiting happening several years later, ruining their life, costing thousands of pounds in healthcare costs, a friend passes you a "study" (there is a thread on the CVS message board showing the obvious flaws in every study) and bang, everything is fine again once you have abstained. Seriously, I am not joking, search Cannabis Hyperemesis in Google, your story is so standard it almost deems it BS. Again, I am not saying that but you really need to come and tell your story to people who understand. You said you always thought it was CVS, did you ever speak to anyone at CVSA? A specialist? A doctor? Anyone on the message board? You have sufferered for a long time now I guess you have posted elsewhere about this?
Also just finally, you mentioned opiates. I really dont know of any CVS sufferer who is able to get this treatment in the ER. Doctors first thought that CVS patients were drug seekers coming to the ER for opiates, so they stopped this type of treatment. Ofcourse they were wrong but it would again be interesting to know who is giving you opiates for CVS symptoms. This however would be useless information on here but vital on the CVSA message board.
Cheers
Sorry to read of what you have gone through, but it sounds very similar to CVS. You say you have looked into CVS, have you seen the thread on the message board?. Our CVS doctors dont think there is any links whatsoever between cannabis and CVS, here is a statement made only last month due to the bad press on these types of forums -
“Recently, there has been considerable controversy over the role of cannabis in these patients. While “cannabinoid hyperemesis syndrome” has been touted as a new diagnosis, there does not appear to be sufficient data to implicate marijuana as a “cause” of CVS. In a recent review of 31 published cases, the average duration of marijuana use preceding onset of vomiting was just over 10 years; the long delay in presentation of symptoms following chronic marijuana use argues against cannabis being a cause for the vomiting. Also, long-term follow-up is lacking in case series of patients with “cannabinoid hyperemesis.” The acute administration of marijuana has been shown in animal studies to stop vomiting and cannabinoid agents such as dronabinol and nabilone have been used to treat nausea and vomiting due to chemotherapy. The effects of chronic marijuana use are poorly understood and whether marijuana use unmasks CVS is unclear; further prospective studies are warranted to address this issue. We currently recommend abstinence of marijuana while treating patients with CVS as this is a risk factor for nonresponse to conventional medications.”
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It would be really helpful if you could come and tell your story on the CVSA message board. I am certainly in no position to argue with you, quiting cannabis has clearly helped you.....it would just be great if you could come and tell your story officially on there. Doctors patients and carers alike read that message board and may just learn something from you. Every piece of evidence shows that cannabis does not cause CVS but you are clearly the one exception!
Do you think cannabis caused your CVS? Or cannabis caused your CVS like symptoms? If the latter, what symptoms were different? Like I said mate, in the nicest way possible it is people like you who are causing problems for genuine CVS sufferers in ER's so it would be great if you could come forward and tell your story officially, we might just learn some actual differences in symptoms!
Your story though unfortunately has been copied and pasted a few times over the CHS threads. I am not saying yours isnt true ofcourse however it is very similar. Everyone who claims to suffer from CHS all follow a standard form - Smoking since age 13/14, vomiting happening several years later, ruining their life, costing thousands of pounds in healthcare costs, a friend passes you a "study" (there is a thread on the CVS message board showing the obvious flaws in every study) and bang, everything is fine again once you have abstained. Seriously, I am not joking, search Cannabis Hyperemesis in Google, your story is so standard it almost deems it BS. Again, I am not saying that but you really need to come and tell your story to people who understand. You said you always thought it was CVS, did you ever speak to anyone at CVSA? A specialist? A doctor? Anyone on the message board? You have sufferered for a long time now I guess you have posted elsewhere about this?
Also just finally, you mentioned opiates. I really dont know of any CVS sufferer who is able to get this treatment in the ER. Doctors first thought that CVS patients were drug seekers coming to the ER for opiates, so they stopped this type of treatment. Ofcourse they were wrong but it would again be interesting to know who is giving you opiates for CVS symptoms. This however would be useless information on here but vital on the CVSA message board.
Cheers
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