Karma is a bitch - and mvapes? Dreamrr? Vicki? all you lovely people - She will bitch-slap the ones that are being insensitive, and totally CRUSH the ones that are snarky to you about your pain/prospects/limitations.
It is tough to deal with chronic illness. Not only the pain, discomfort, limitations, but also the mental side of it. The emotional. It is devastating to live without hope. I also think it is wrong of us to abandon Hope, when shit hits the fan.
It is more wrong for someone else to try to take away your hope. Always, always, always, there is hope. There is hope that a random researcher will stumble across the key to relieve the illness (any of them), to ease the pain, the remove the limitation.
There is hope that the human body, with its amazing interconnections and abilities, will develop a compensation effect that will alleviate illness.
There is hope that better pain management will be developed, which will actually take the pain away, without damaging us.
It's a tough road, but we are tougher people.