Multiple sclerosis and NMJ

Captain Comply

Captain Comply

Wellness over intoxication
Hi there everyone

As some of you may have noticed I have been absent from the FC form for almost a month. My wife and I are both medical card holders in our stay with serious conditions. However last months my wife's condition took a turn for the worst. After a month-long migraine she lost vision in her left eye 100% in a matter of five days.

After an MRI at some more tests she was diagnosed with multiple sclerosis. Her exasperation is still here and after six days of high-dose steroid intravenous therapy she still struggling to see.

She has to see a cardiologist have her heart contact to go on a heavy MS blocker name Gilenya.

Her cannabis use has tripled since the onset as it makes her feel normal. Any support information would be greatly appreciated from this community. This is been the hardest for us as I am in love with my wife after being with her for 15 years.

Thanks in advance I hope everybody has a very happy Independence Day here in the USA and enjoy your day elsewhere be safe and have fun.
 
Captain Comply

Captain Comply

Wellness over intoxication
samantabha

samantabha

climbing the mountain of the mind
Company Rep
@Captain Comply, I was diagnosed with MS about 10 years ago. I resolved not to do any drugs but simply to adhere to a low-fat vegetarian diet. I haven't completely followed my own rules about the diet, but I definitely have stayed off the drugs (and have not had any episodes since the initial ones). I highly recommend that you check out Dr. Roy Swank's research on MS and lowfat diets. Dr. John McDougall has a nice website, too, which carries on some of Dr. Swank's work (he passed away in 2008). In fact, I believe Dr. McDougall is looking for volunteers for his on-going research projects.
 
Captain Comply

Captain Comply

Wellness over intoxication
samantabha said:
@Captain Comply, I was diagnosed with MS about 10 years ago. I resolved not to do any drugs but simply to adhere to a low-fat vegetarian diet. I haven't completely followed my own rules about the diet, but I definitely have stayed off the drugs (and have not had any episodes since the initial ones). I highly recommend that you check out Dr. Roy Swank's research on MS and lowfat diets. Dr. John McDougall has a nice website, too, which carries on some of Dr. Swank's work (he passed away in 2008). In fact, I believe Dr. McDougall is looking for volunteers for his on-going research projects.
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Wow thank you so much! I haven't been on FC for a little while now as it has been DR heavy week. I'm am going to check out these for sure.
 
Captain Comply,
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samantabha

samantabha

climbing the mountain of the mind
Company Rep
@Captain Comply, have you had a chance to check out Dr. Swank's work? I recall that the remission rate is very high (more than 70% compared to the abysmal - what is it? - 12% for interferon or some of the other drugs). Stats from around the world show a curiously high incidence of MS and other neurological disorders in countries with high dairy consumption. There's a theory being floated that it's not only the fat that is the culprit, but also the protein. The casein molecule is apparently one that is relatively difficult for the body to break down and that consequently the body can easily develop a kind of allergic reaction to it. Interestingly casein is also implicated in various cancers. See T. Colin Campbell's research ('The China Project', I think). Dr. Campbell was able to "turn off" and "turn on" liver cancer simply by varying levels of protein nutrient in mice that had been infected with an aflatoxin (cancer causing agent found in raw peanuts). I wouldn't be surprised if dairy protein didn't trigger cases of MS as well.
Anyway, the main thing, as you emphasize, is "to feel as well as possible". The lowfat non-dairy diet could really help. MJ can help (as you know). You shouldn't have to live in pain and feel that things are just going to get worse. I remember that look at the neurologists face - that kind of bugged out piteous look. I thought, "like you aren't going to eventually become ill and die?" What's to pity? Everyone lives with an illness. It's called the illness of living in a human body, that thing full of holes and imbalances and vulnerabilities. Nothing is ever going to be perfect. But you can still be happy.
 
ataxian

ataxian

PALE BLUE DOT
Captain Comply said:
Hi there everyone

After a month-long migraine she lost vision in her left eye 100% in a matter of five days.

Her cannabis use has tripled since the onset as it makes her feel normal. Any support information would be greatly appreciated from this community. This is been the hardest for us as I am in love with my wife after being with her for 15 years.
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I'm not a medical professional however like your wife I'm a Medical Marijuana Patient.

I find cannabis to help me manage better however to cure me?

For Headaches PINEAPPLE KUSH seems to help?
 
Captain Comply

Captain Comply

Wellness over intoxication
samantabha said:
@Captain Comply, have you had a chance to check out Dr. Swank's work? I recall that the remission rate is very high (more than 70% compared to the abysmal - what is it? - 12% for interferon or some of the other drugs). Stats from around the world show a curiously high incidence of MS and other neurological disorders in countries with high dairy consumption. There's a theory being floated that it's not only the fat that is the culprit, but also the protein. The casein molecule is apparently one that is relatively difficult for the body to break down and that consequently the body can easily develop a kind of allergic reaction to it. Interestingly casein is also implicated in various cancers. See T. Colin Campbell's research ('The China Project', I think). Dr. Campbell was able to "turn off" and "turn on" liver cancer simply by varying levels of protein nutrient in mice that had been infected with an aflatoxin (cancer causing agent found in raw peanuts). I wouldn't be surprised if dairy protein didn't trigger cases of MS as well.
Anyway, the main thing, as you emphasize, is "to feel as well as possible". The lowfat non-dairy diet could really help. MJ can help (as you know). You shouldn't have to live in pain and feel that things are just going to get worse. I remember that look at the neurologists face - that kind of bugged out piteous look. I thought, "like you aren't going to eventually become ill and die?" What's to pity? Everyone lives with an illness. It's called the illness of living in a human body, that thing full of holes and imbalances and vulnerabilities. Nothing is ever going to be perfect. But you can still be happy.
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Hi there @samantabha,

Yes I have been reding up on it am sharing the info with my wife. I will admit it was a bit overwhelming for me we are organic eaters and believe a well balanced diet is key. But we do consume butter, low fat milk half and half in coffee. And all the little things like crackers with butter in the ingredients. Wow it a lot but u am going to start changing how I prepare all her food. I cook all the meals in our home. So she won't have a choice lol. Thanks agin for your input. It is going to help.

You said you haven't taken any drugs so nothing to treat your MS? Have you had any recent MRIs that show it hasn't progressed in the time you've been dieting? That would be interesting for sure.
I hope that you are feeling well and living your life with power. This has been very hard on our household.

My wife has started a new medication named Gilenya last week. Now we are just fighting with the horrible people disability. People don't realize how difficult it is in this country when you do not have a lot of money and you become seriously ill. It saddens me that were not in a better financial position. But we have love and hope and that can beat all.

Happy Friday and be Well
 
ataxian

ataxian

PALE BLUE DOT
Captain Comply said:
Hi there @samantabha,

we are organic eaters and believe a well balanced diet is key. But we do consume butter, low fat milk half and half in coffee. And all the little things like crackers with butter in the ingredients. Wow it a lot but u am going to start changing how I prepare all her food. I cook all the meals in our home.
Happy Friday and be Well
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Let me add that I'm very strick about diet. DAIRY/GLUTEN FREE no processed or fast food. We make our own meals. It's not more expensive to eat correctly. The money saved from not buying junk food is amazing.

Most people that have a autoimmune disease benefit from a strict diet.

I quit all drugs 3 years ago.
The side effects were not worth it!

HOLISTIC living!
To me cannabis is like herbal tea.
 
samantabha

samantabha

climbing the mountain of the mind
Company Rep
Agree with you, @ataxian . I was told to take interferon back when I was first diagnosed (that was 10 years ago or so). I took the box home with me and read carefully about the procedure of injecting myself, then all the possible side effects. Needless to say....I freaked out. I would have to take this stuff everyday for the rest of my life? I would have to be bound to a needle? I could experience all kinds of nasty side effects? The remission rate was iffy? And how much was this going to cost me and my insurance company? I didn't have to even write it all down on a balance sheet. The decision was made for me. NO DRUGS.
So, @Captain Comply, I have not done anything, basically, except go mainly vegan and reduce stress (when I can!) and take thyroid medication. All of the symptoms I experienced when I had my original attack gradually went away as the years passed. Within a couple years I stopped getting the periodic tiredness, shaking, the numbness, the tingling, the leg weakness, the writing trouble. I dragged my left leg for a couple months in the beginning, then after about a year it got much better. After 8 years I wasn't noticeably limping anymore at all. Now I can't think of anything that really bothers me physically. I am not tired, and I feel great. I swim, bike, run, work out with weights and can do full-lotus meditation sitting, really anything I want to. I really should have an MRI done to see if the scarring shows the same or reduced pattern, but I hate that machine so much. I'm claustrophobic in it, and honestly, I don't know if I want to know. All through my life they've been testing me for this or that. My parents were told when I was ten years old that I had cancer and was going to die. I've had mammograms that predicted breast cancer. I was x-rayed with pneumonia. But here I am, healthy and ALIVE, with all my parts intact and no medical invasions. I recall a story about Marie Curie, the famous scientist: someone recounted that for a long time she refused to believe she was dying of radiation sickness and that the denial helped her to keep focusing on her work and living a decent life. I don't recommend this sort of attitude for anyone else (and I know your situation must be very different in certain ways), but for the most part I've adopted it for myself. My way to health is.....stay away from doctors.
 
grokit

grokit

well-worn member
samantabha said:
My parents were told when I was ten years old that I had cancer and was going to die. I've had mammograms that predicted breast cancer.
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Your story is awesome, and makes me consider what Angelina Jolie recently put herself through, when she probably could have just adopted a healthy holistic lifestyle like yourself instead. Well done!
 
samantabha

samantabha

climbing the mountain of the mind
Company Rep
Thanks @ataxian. I was stunned when I heard what Angelina Jolie had done. Why would anyone hack away at their body "just in case" (it would save the body?!). It seems so macabre. Let's see.....maybe I'll just rip out my heart _ because that could save me from getting a heart attack. Craziness.
 
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