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Fuck the Parkinson's, the Dr just gave me a reason to smoke MORE!

Vicki

Herbal Alchemist
110iutl.png
 

mvapes

Scratchin' Glass!
Accessory Maker
So these dumb bastards at the nursing home wanted to wait another fucking week just in case she started to eat again. I guess they were concerned cause they heard she wanted one more road trip on her Harley. My mother told them and G_d Bless her strength that she didn't care what they wanted to do and enough is enough. Arrangements are being made to transfer Nanny to Cavalry.

She will finally get the peace that she deserves.
 
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Campers Crumpet

What has been seen can not be unseen :|
People with unprocessed memories/PTSD do NOT have the ability to make that "happy" choice. We react at an instinct level before analytical thought. This is why EMDR works.

On a happier note, not only am I taking the girls to see Bruno Mars in August, but I just bought 2 tickets for ZZ Top and Jeff Beck!!! And my wife is going . . . :rockon:
Of course, I agree and have foot in mouth syndrome at times. I hope to show support and inspiration. You are all my friends :)[/QUOTE]
 

Enchantre

Oil Painter
I'm going to work today. Feel like it's really important to get out and interact again.
I'm not sure how well my at work personna/facade will hold up, but I think it's important that I try.

We do have an EAP (employee assistance program) through work, so I can get an outside perspective easily, and I have very positive support from hubby for working with a professional with this.

I'm also working on knowing that it's okay, and I just have really fucking awesome coping skills, most of the time, and sometimes I don't, and that's okay too.

Edit: Oh, and HERE, this is too wonderful today. Happy Earth Day!
 
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DDave

Vape Wizard
Accessory Maker
My buddy just gave me an idea. Tomorrow when everybody is enjoying 420 do me a favor.

On at least one puff I'd like exhaled towards NY for my Nanny.

THIS.jpg
@mvapes

On 4/20, elevated a bit more than normal and dedicated this cloud to Nanny! Along with prayers and best wishes!!!

It's going to get a bit beat up on its journey from the West Coast, but believed it was dense enough to make the trip!
ep10-mushi-cloud-sm.jpg


Nanny sounds like such an awesome person! :rockon:
 

DDave

Vape Wizard
Accessory Maker
So, I'm at my neurologist and after my check up he is sending me for more testing on my lungs.

Should be fun, I fucking love have that tube down my throat!

Reminds of my Turkish prison days!
@mvapes , sorry to hear about the testing & good luck!

Hey, I just had my secretary call your Neurologist and I think we got it all straightened out. I didn't catch the whole conversation, just the last part, but I think this sums it up fairly well! ;)

and+the+horse.jpg
 

Vicki

Herbal Alchemist
I hope the tests aren't too unpleasant @mvapes .

I just got back from the Orthopedic surgeon. He said the pop I heard was scar tissue releasing, and is normal. It bruised a bit, swelled up and is painful, but should be better in about a week. He took more x-rays just to be safe and everything else still looks good. I'm just gonna have to medicate a bit more until the scar tissue thing gets better. :)
 

mvapes

Scratchin' Glass!
Accessory Maker
Guys, it wasn't a good visit. I'm going to have to make this short as I'm a bit upset but my doctor wants to push forward with the Brain Surgery which unknown to me also includes having a pacemaker put in my chest so I could be monitored as well as them installing a data port on my chest so that the device can be tweaked.

I don't know what else to say - mvapes is hurting and scared.
 

Vicki

Herbal Alchemist
Guys, it wasn't a good visit. I'm going to have to make this short as I'm a bit upset but my doctor wants to push forward with the Brain Surgery which unknown to me also includes having a pacemaker put in my chest so I could be monitored as well as them installing a data port on my chest so that the device can be tweaked.

I don't know what else to say - mvapes is hurting and scared.

Can you get a 2nd opinion?? Please get a 2nd opinion!
 
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mvapes

Scratchin' Glass!
Accessory Maker
so im seeing another neuro next week for a second opinion. I've calmed down now and let my brain absorb everything (post vape).

It wasn't necessarily what the doctor said as much as it the timing. Right before I left to go see the dr my mother had sent me a photo of Nanny. It fucking floored me to say say the least, this was on top of the fact when my doctor called me to come in earlier for testing my wife was nowhere to be found. at this point my anxieties were already through the roof.

They checked my BP when I arrived as always (for pd plus patients) and my pressure was through the roof. My entire right sight was tremoring and I was have dyskinesia in my neck. This means my head was nodding without me knowing.

Once they saw what was happening to me without any control aside from a palm full of levadopa surgery became a very viable option.

If I have the surgery and it's successful it would reduce my relying on the pills which in turn hurt the old kidneys.

Here's the part they keep in fine print:

The most serious potential risk of the surgical procedures is bleeding in the brain, producing a stroke. This risk varies from patient to patient, depending on the overall medical condition, but the average risk is about 10%. If stroke occurs, it usually occurs during, or within a few hours of, surgery. The effects of stroke can range from mild weakness that recovers in a few weeks or months to severe, permanent weakness, intellectual impairment, or death. The second most serious risk is infection, which occurs in about 14% of patients. If an infection occurs, it is usually not life threatening, but it may require removal of the entire DBS system. In most cases, a new DBS system can be re-implanted when the infection is eradicated. Finally, hardware may break or erode through the skin with normal usage, requiring it to be replaced.

In the first few days after surgery, it is normal to have some temporary swelling of the brain tissue around the electrode. This may produce no symptoms, but it will most likely produce mild disorientation, sleepiness, or personality change that lasts for up to 3 months

.There are several available surgical methods. In the most common method, implantation of the brain electrode is performed with the patient awake (FUCK THAT), using only local anesthetic and occasional sedation. The basic surgical method is called stereotaxis, a method useful for approaching deep brain targets though a small skull opening. For stereotactic surgery, a rigid frame is attached to the patient's head just before surgery otherwise known as a Halo, after the skin is anesthetized with local anesthetic. A brain imaging study (MRI or CT) is obtained with the frame in place. The images of the brain and frame are used to calculate the position of the desired brain target and guide instruments to that target with minimal trauma to the brain. After frame placement, MRI/CT, and calculation of the target coordinates on a computer, the patient is taken to the operating room. At that point an intravenous sedative is given, a Foley catheter is placed in the bladder (FUCK YOU), the stereotactic frame is rigidly fixed to the operating table, a patch of hair on top of the head is shaved, and the scalp is washed. After giving local anesthetic to the scalp to make it completely numb, an incision is made on top of the head behind the hairline and a small opening (1.5 centimeters, about the size of a nickel) is made in the skull. At this point, all intravenous sedatives are turned off so that the patient becomes fully awake. (I DON'T THINK SO)

To maximize the precision of the surgery, we employ a "brain mapping" procedure in which fine microelectrodes are used to record brain cell activity in the region of the intended target to confirm that it is correct, or to make very fine adjustments of 1 or 2 millimeters in the intended brain target if the initial target is not exactly correct. The brain mapping produces no sensation for the patients, but the patient must be calm, cooperative, and silent during the mapping or else the procedure must be stopped. The brain's electrical signals are played on an audio monitor so that the surgical team can hear the signals and assess their pattern. The electronic equipment is fairly noisy, and the members of the surgical team often discuss the signals being obtained so as to be sure to interpret them correctly. Since each person's brain is different, the time it takes for the mapping varies from about 30 minutes to up to 2 hours for each side of the brain. The neurological status of the patient (such as strength, vision, and improvement of motor function) is monitored frequently during the operation, by the surgeon or by the neurologist.

When the correct target site is confirmed with the microelectrode, the permanent DBS electrode is inserted and tested for about 20 minutes. The testing does not focus on relief of parkinsonian signs but rather on unwanted stimulation-induced side effects. This is because the beneficial effects of stimulation may take hours, days, or even months to develop, whereas any unwanted effects will be present immediately. For the testing, we deliberately turn the device up to a higher intensity than is normally used, in order to deliberately produce unwanted stimulation-induced side effects (such as tingling in the arm or leg, difficulty speaking, a pulling sensation in the tongue or face, or flashing lights). The sensations produced at high intensities of stimulation during this testing are experienced as strange but not painful. We thus confirm that the stimulation intensity needed to produce such effects is higher than the intensity normally used during long-term function of the device.

Once the permanent DBS electrode is inserted and tested, intravenous sedation is resumed to make the patient sleepy, the electrode is anchored to the skull with a plastic cap, and the scalp is closed with sutures. The stereotactic headframe is removed. The patient then receives a general anesthetic to be completely asleep for the placement of the pulse generator or pacemaker in the chest and the tunneling of the connector wire between the brain electrode and the pulse generator unit. This part of the procedure takes about 2 hours.

Oh and because I'm fucking bald there will be a visible scar. And they get to fuck with me like a puppet in there. With my luck I'll blowing every doctor in the room for science as the shit bags stand there laughing.

I could hear it now, "make em do it again, make em do it again"! Then they probably wipe that from my memory and all I'm Left with is a sore throat and chapped lips.

I'll get through this, I always do but the timing couldn't be worse.
 

mvapes

Scratchin' Glass!
Accessory Maker
There is no fucking way if I were "awake" for that that I wouldn't be talking the whole fucking time. and scared. Calm and silent. Bullshit.

Okay, you're a better man than I am. Second opinion, hell yes! maybe they could sedate you more?

:whoa:

Why the fuck isn't there a hug smiley?


that's what I fucking said! Awake? I assume the catheter is so I don't piss on their legs. :lmao:
 

ataxian

PALE BLUE DOT
Guys, it wasn't a good visit. I'm going to have to make this short as I'm a bit upset but my doctor wants to push forward with the Brain Surgery which unknown to me also includes having a pacemaker put in my chest so I could be monitored as well as them installing a data port on my chest so that the device can be tweaked.

I don't know what else to say - mvapes is hurting and scared.
Your in my prayers!

Vickie is right!
 

Melting Pot

Sick & Twisted
mvapes although I am fairly new to this forum I feel we have a connection more than our love for mj/tattoos/strippers. After reading
you're last post litteraly brought tears to my eyes i'm a little more emotional than usual been sitting in hospital .I think tomorrow is day
14 had my pacemaker/defibrillator
installed in my chest yesterday what a joy being in the hands of some scumbag money hungry doctor not the results they/me were looking for heart rate still between 100/170 bpm they are keeping me heavyly medicated not the good stuff so that my defibrillator doesn't keep zapping me unfortunately the meds are knocking my blood pressure in the
dirt scumbags still don't know what's wrong with me.So I really hope u get a second opinion I to a
Tattooed Floridian waiting for November 4 for a change in our laws and lost my mom a little over
a year ago and I totally blame the
doctors for her death my prayers go out to u and your family. I hope u have luck than me and my family
Good Luck brother keep your spirit's high a mind higher! !!!!!!

As always FUCK em all

Really sorry to hear about your nanny
 

Belgianvapor

Well-Known Member
Ok, so I feel a bit stupid for posting this, because my issues are nowhere near what you guys are describing here so this should be light reading for most of you guys. (by the way, altough I don't know anybody here, I still have a strong compassion for you guys/girls)
A while ago I started having extrasystoles (when your heart beats a bit faster right after the previous beat, so it waits a bit longer for the next beat to get back in the rythm wich results in a harder beat that can easily be felt) I felt it every now and then, once or twice but a few times I had them almost every other beat, multiple times in a row, for half an hour or so.
This scared the fuck out of me, so I grabbed my big balls out of the closet and went to the doctor. (I'm not
a doctor guy hence the need for a bigger pair)
That white coated know it all told me it's probably from my mj use, according to him, mj can have an
effect to the heart wich could trigger an extrasystole, together with the massive amounts of stress I
feel on a daily basis due to my line of work I could experience more of those.
His advice was....stop vaporizing. I told him I stopped drinking coffee, stopped drinking coke, hardly ever drink alcohol, never smoked etc but he still adviced to quit it and relax more (that's why I started using mj as a main reason in the first place !)
So here I am, ready to say goodbye to this awesome herb.
I have to be one of those few who doesn't benefit from mj :ugh:

*edit* five minutes after I wrote this, I was reading cnn news and found this :

http://thechart.blogs.cnn.com/2014/04/23/marijuana-use-linked-to-heart-problems/?hpt=hp_t2

So I better listen to my doctor's advice I supose?
(the comments on this article made me smile though)
 
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Melting Pot

Sick & Twisted
Ok, so I feel a bit stupid for posting this, because my issues are nowhere near what you guys are describing here so this should be light reading for most of you guys. (by the way, altough I don't know anybody here, I still have a strong compassion for you guys/girls)
A while ago I started having extrasystoles (when your heart beats a bit faster right after the previous beat, so it waits a bit longer for the next beat to get back in the rythm wich results in a harder beat that can easily be felt) I felt it every now and then, once or twice but a few times I had them almost every other beat, multiple times in a row, for half an hour or so.
This scared the fuck out of me, so I grabbed my big balls out of the closet and went to the doctor. (I'm not
a doctor guy hence the need for a bigger pair)
That white coated know it all told me it's probably from my mj use, according to him, mj can have an
effect to the heart wich could trigger an extrasystole, together with the massive amounts of stress I
feel on a daily basis due to my line of work I could experience more of those.
His advice was....stop vaporizing. I told him I stopped drinking coffee, stopped drinking coke, hardly ever drink alcohol, never smoked etc but he still adviced to quit it and relax more (that's why I started using mj as a main reason in the first place !)
So here I am, ready to say goodbye to this awesome herb.
I have to be one of those few who doesn't benefit from mj :ugh:
I would get a second opinion there is not enough studies on mmj affects on the heart sound's like he's blaming it on something he doesn't like or understand typical for scumbag Fucking doctors
Fuck doctors and the whole medical feild for blaming it on something they know nothing about I've been smoking over 30 years my and my cardiologist never said none of that bullshit!!!!:spliff:

Any form of combusting anything is bad for for us we know that. That's why
we chose to vaporize maybe u should rephrase that u vape mmj not smoke mmj! !!!

Find a different cardiologist the heart rate and rhythm is controled the bodies
electrical system u need EPS studies
 
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